The Australasian Association of Cancer Registries (AACR) consists of the eight Australian state and territory cancer registries, the New Zealand Cancer registry and the National Cancer Statistics Clearing House at the Australian Institute of Health and Welfare (AIHW). The Cancer and Screening Unit at the AIHW provides the Secretariat for the AACR Executive. Cancer registration is an important and fundamental tool in cancer monitoring. Australian states and territories are required by legislation to maintain a cancer registry of new cases of malignant cancer. In order to co-ordinate cancer statistics on a national basis, the National Cancer Statistics Clearing House (NCSCH) was established in 1986 at the AIHW and is supervised by the AACR.
The AACR Executive Committee comprises an AIHW representative and five representatives of State or Territory cancer registries elected by the AACR at its annual general meeting. The Executive committee includes at least two Directors of cancer registries; one Director is the Committee Chair. The role of the AACR Executive Committee in relation to the NCSCH is to provide advice to the AIHW on the direction of the NCSCH work program, development of publication topics and strategies, and to provide on-going technical advice in the operation of the NCSCH. The AACR Executive Committee meets 3 or 4 times per year, usually by teleconference, where a progress report is presented by the AIHW. The AACR Executive Committee is also responsible for reporting the progress of the NCSCH to AACR members. This is done through e-mail consultation during the year, distribution of minutes of the Executive committee to all Registries, and annual reporting at the annual general meeting.
National Cancer Statistics Clearing House protocol
Membership and contact details
Members of the AACR are the following:
Cancer Institute NSW
PO Box 41
Alexandria NSW 1435
Phone: +61 2 8374 5749
Fax: +61 2 8374 5744
Home page: http://www.cancerinstitute.org.au
Email:
Manager: Narelle Grayson
Email:
Phone: +61 2 8374 5645
New South Wales cancer registry data release guidelines (under construction)
The Cancer Council Victoria
1 Rathdowne Street
Carlton South VIC 3053
Phone: +61 3 9635 5000
Fax: +61 3 9635 5210
Home page: www.cancervic.org.au
Director: Professor Graham Giles
Director Cancer Epidemiology Centre
Deputy Director Cancer Control Research Institute
1 Rathdowne Street
Carlton South VIC 3053
Email:
Phone: +61 3 9635 5155
Director Information Systems:
Ms Helen Farrugia
Email:
Phone: +61 3 9635 5318
Information Manager:
Mrs Vicky Thursfield
Email:
Phone: +61 3 9635 5162
Victorian cancer registry data release guidelines (under construction)
Cancer Council Queensland
PO Box 201
Spring Hill QLD 4004
Phone: +61 7 3634 5336
Fax: +61 7 3259 8590
Email:
Home page: www.cancerqld.org.au
Director: Professor Joanne Aitken
Cancer Council Queensland
553 Gregory Terrace, Fortitude Valley
PO Box 201
Spring Hill QLD 4004
Email:
Phone: +61 7 3634 5300
Registrar: Ms Carly Scott
Email:
Phone: +61 7 3634 5333
Fax: +61 7 3259 8590
Queensland cancer registry data release guidelines (under construction)
Information Collection and Management
Department of Health (WA)
1st floor C Block, 189 Royal Street
East Perth WA 6004
Phone: +61 8 9222 4022/4249
Fax: +61 8 9222 4236
Home page: www.health.wa.gov.au/wacr/
Email:
Director & Registrar: Dr Tim Threlfall
Email:
Western Australian cancer registry data release guidelines
Epidemiology Branch
Department of Health
PO Box 6
Rundle Mall SA 5000
Phone: +61 8 8226 6158
Fax: +61 8 8226 6672
Home page: www.health.sa.gov.au/pehs/branches/branch-cancer-registry
Director: Dr Ron Somers
Email:
Phone: +61 8 8226 6361
Registrar: Ms Elaine Morton
Email:
Phone: +61 8 8226 0787
South Australian cancer registry data release guidelines (under construction)
Menzies Research Institute
Private Bag 23
Hobart TAS 7001
Phone: +61 3 6226 7757
Fax: +61 3 6226 7755
Email:
Website: www.menzies.utas.edu.au/cancer_reg
Director: Professor Alison Venn
Manager: Ms Marita Dalton
Tasmanian cancer registry data release guidelines
Northern Territory Cancer Registry
Health Gains Planning Branch
4th Floor, AANT Building
Department of Health and Community Services
PO Box 40596
Casuarina NT 0810
Phone: +61 8 8985 8078
Fax: +61 8 8985 8075
Epidemiologist & Acting Cancer Registrar: Ms Karen Dempsey
Email:
Phone: +61 8 8985 8081
Fax: +61 8 8 985 8075
Northern Territory cancer registry data release guidelines (under construction)
Population Health Research Centre
ACT Health
Level 1, Building 5
The Canberra Hospital
PO Box 11
Woden ACT 2606
Email:
Director: Ms Linda Halliday
Phone: +61 2 6207 4036
Fax: +61 2 6244 4138
Epidemiologist: Ms Janet Li
Phone: +61 2 6207 4026
Data Manager: Ms Rosalind Sexton
Phone: +61 2 6207 4032
Australian Capital Territory cancer registry data release guidelines (under construction)
New Zealand Cancer Registry
Ministry of Health
PO Box 5013
Wellington
NEW ZEALAND
Phone: +64 4 816 3334
Fax: +64 4 816 2897
Team Leader: Ms Susan Hanna
Email:
Phone: +64 4 816 3334
Website: www.moh.govt.nz/moh.nsf/indexmh/dataandstatistics-collections-nzcr
Australian Institute of Health and Welfare
GPO Box 570
Canberra ACT 2601
Phone: +61 2 6244 1000
Fax: +61 2 6244 1299
Email:
Home page: www.aihw.gov.au/national-cancer-statistics-clearing-house/
Unit Head: Ms Chris Sturrock
Phone: +61 2 6244 1118
Contact Officer: Dr Mark Short
Phone: +61 2 6244 1063
Australasian Association of Cancer Registries
Secretariat
C/- Cancer and Screening Unit
Australian Institute of Health and Welfare
GPO Box 570
Canberra ACT 2601
Email:
Web page: Australasian Association of Cancer Registries (AACR) member access
Phone: +61 2 6244 1000
Fax: +61 2 6244 1299
Confidentiality
The Australian Institute of Health and Welfare Act 1987 as amended in 1989 obliges the Institute to enforce any conditions attached to the supply of data to the Institute by State and Territory registries. As Commonwealth officers, the release of information by Institute staff is also controlled by the Privacy Act 1988, Public Service Regulations and the Commonwealth Crimes Act.