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Many organisations are involved in collecting, collating and analysing cancer and cancer screening information in Australia.

See Figure: Australia’s cancer data environment: key organisations and data collections, which shows national cancer and screening data sources and the flow of data between them.

National Cancer Statistics Clearing House (NCSCH)

The NCSCH was established in 1986 as the national repository of cancer incidence and mortality statistics. Its purpose is to monitor and report on Australia's cancer levels and trends and to help in service planning and research that aim to reduce those levels. The NCSCH is a collaborative partnership between the Australasian Association of Cancer Registries and the AIHW and is housed within the Cancer and Screening Unit of the AIHW.

The objectives and working structure of the NCSCH are defined in the NCSCH 2013 protocol (288KB PDF).

National Cancer Statistics Clearing House (secretariat)
Cancer and Screening Unit
Australian Institute of Health and Welfare
GPO Box 570
Canberra ACT 2601

Email: cancer@aihw.gov.au
Phone: +61 2 6244 1000
Fax: +61 2 6244 1299

Australasian Association of Cancer Registries (AACR)

The AACR is a collaborative body representing the eight Australian state and territory cancer registries, the New Zealand Cancer Registry and the AIHW. It was formed in 1982 to provide a formal mechanism for promoting uniformity of collection, classification and collation of cancer data. The AACR Executive Committee, comprising an AIHW representative and five state and territory cancer registry representatives, meets up to four times each year. The Committee advises the AIHW on the direction of the NCSCH work program, the development of publication topics and strategies, and provides technical advice on the operation of the NCSCH.

The objectives of the AACR are to:

  • analyse and report on the data in its national repository of cancer incidence and mortality statistics;
  • support research based on these data; and
  • develop and improve cancer statistics generally.

AACR membership and contact details

Australian Capital Territory Cancer Registry

Epidemiology Section, Health Improvement Branch
Population Health Division, ACT Health
GPO Box 825
Canberra ACT 2601

Email: cancerregistry@act.gov.au

New South Wales Cancer Registries System

Cancer Institute NSW
PO Box 41
Alexandria NSW 1435

Website: NSW Cancer Registries System, Cancer Institute NSW
Email: DARenquiries@cancerinstitute.org.au  

Northern Territory Cancer Registry

Health Gains Planning Branch
Department of Health
PO Box 40596
Casuarina NT 0810

Queensland Cancer Registry

Cancer Council Queensland
PO Box 201
Spring Hill QLD 4004

Website: www.cancerqld.org.au
Email: qcr@cancerqld.org.au

South Australian Cancer Registry

Department of Health
PO Box 6, Rundle Mall Post Office
Adelaide SA 5000

Website: www.health.sa.gov.au/...

Tasmanian Cancer Registry

Menzies Research Institute
Private Bag 23
Hobart TAS 7001

Website: www.menzies.utas.edu.au/research/research-centres/tasmanian-cancer-registry
Email: menzies.tcr@utas.edu.au

Victorian Cancer Registry

Cancer Council Victoria
615 St Kilda Rd
Melbourne VIC 3004

Website: www.cancervic.org.au/about-our-research/registry-statistics/vcr
Email: vcr@cancervic.org.au

Western Australian Cancer Registry

Department of Health (WA)
1st floor, C Block, 189 Royal Street
East Perth WA 6004

Website: www.health.wa.gov.au/wacr/
Email: wacanreg@health.wa.gov.au

New Zealand Cancer Registry

Ministry of Health
PO Box 5013
Wellington
New Zealand

Website: www.moh.govt.nz/moh.nsf/indexmh/dataandstatistics-collections-nzcr

Cancer Monitoring Advisory Group (CMAG)

The CMAG was established to provide expert advice to the AIHW regarding the activities of the National Centre for Monitoring Cancer. It is a multidisciplinary committee whose members are familiar with the cancer data environment, current cancer-related priorities, policies and practices; and emerging issues.

Contact:

Cancer and Screening Unit
Australian Institute of Health and Welfare
GPO Box 570
Canberra ACT 2601

Email: cancer@aihw.gov.au
Phone: +61 2 6244 1000

National Centre for Monitoring Cancer (NCMC)

The NCMC was established in 2009 within the AIHW to improve population-level cancer data and related evidence in Australia and meet an increasing demand for cancer information. The NCMC aims to monitor cancer rates, their impact and outcomes, and identify and address gaps in population-level cancer data to improve the evidence base. The Cancer Monitoring Advisory Group (CMAG) provides expert advice on the NCMC work program and is guided by the National Centre for Monitoring Cancer Framework: 2012.

The Cancer Monitoring Advisory Group (CMAG) provides expert advice to the AIHW about the activities of the NCMC. The CMAG includes members who are familiar with the cancer data environment, current cancer-related priorities, policies, practices and emerging issues.

To ensure that the work of the NCMC complements other activities in the cancer environment the NCMC collaborates closely with major stakeholders, in particular the Australasian Association of Cancer Registries (AACR), the Department of Health and Cancer Australia.

Figure: Australia’s cancer data environment: key organisations and data collections

cancer-organisations-data-sources

Note: Rectangles and dark arrows respectively represent organisations and relationships between them. Circles and light arrows respectively represent national cancer and screening data sources and the flow of data between them.

Source: adapted from Figure 2.2, National Centre for Monitoring Cancer Framework: 2012