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The AIHW has two main data holding for deaths data: the National Mortality Database and the National Death Index. Both are considered Essential Statistical Assets for Australia.
The AIHW manages and uses deaths data for monitoring and surveillance of deaths at the population level and for data linkage in health research. Data linkage (also known as data integration) involves bringing together information about people, places and events to get more out of the data in a way that protects individual privacy and confidentiality. The resulting datasets are used for statistical and research purposes only and usually disposed of as soon as the project is completed. All data linkage work at AIHW requires approval by the AIHW Ethics Committee.
The AIHW is also an accredited Integrating Authority. In order to operate as a Commonwealth Integrating Authority the AIHW has strengthened its data integration governance and administrative framework with the creation of a Data Integration Services Centre. The Centre is located within the Institute’s building, however it is physically separated and maintains additional data security. Data linkage activities respect the privacy of individuals by ensuring that no single researcher has access to identifying information such as name and address and health information that is derived from the linkage process.
The AIHW operates under a strict privacy regime which has its basis in section 29 of the Australian Institute of Health and Welfare Act 1987 (AIHW Act) and the Privacy Act 1988 (Privacy Act). For more information, see Privacy of data.
In addition, a range of AIHW policies ensure the security of its data holdings including:
The National Mortality Database (NMD) holds records for deaths in Australia from 1964 to 2011. The database comprises information about causes of death and other characteristics of the person, such as sex, age at death, area of usual residence and Indigenous status. The cause of death data are sourced from the Registrars of Births, Deaths and Marriages in each state and territory, the National Coronial Information System and compiled and coded by the Australian Bureau of Statistics (ABS). For more information about the collection and compilation of deaths data in Australia, see About deaths data.
For more information about deaths in Australia and data quality, refer to ABS Deaths, Australia (ABS Catalogue No. 3302.0) and ABS Causes of death, Australia (ABS Catalogue No. 3303.0), which are available from the ABS website.
GRIM Books are interactive Excel workbooks that house historical and recent deaths data for specific causes of death in a readily accessible and easy to use format. The GRIM Books refer to different years for different causes of death, depending on the data availability, with some GRIM Books starting at 1907. The workbooks present age- and sex-specific counts and rates of deaths along with other summary measures including mean age at death, age-standardised death rates and potential years of life lost.
These workbooks are the only national level electronic source of readily available tabulations of deaths data for deaths registered prior to 1964. Data from 1964 onwards are sourced from the NMD.
GRIM Books (including up to 2011 data) are available for the following diseases:
Please contact the AIHW if you require these data in a different format.
Customised tabulations of deaths data from the NMD can often be provided, depending on the level of detail required. Table 1 shows the types of information available in the NMD.
The National Death Index (NDI) is a catalogue of death records that is used in data linkage for epidemiological studies. Its use is strictly confined to AIHW Ethics Committee approved health and medical research. The NDI contains person level records of all deaths occurring in Australia since 1980 obtained from the Registrars of Births, Deaths and Marriage in each state and territory. The Institute maintains a secure physical and computer environment for the linkage of the NDI with other data sets for research purposes, along with other measures to protect the privacy of individuals and the confidentiality of information. For more information, see the AIHW's Customer care charter.
The information in the NDI is supplemented with information about the cause of death using a once-off data linkage between the NDI and the NMD. This enhancement enables research that requires both fact of death (whether a person died) and cause of death (what the person died from).