AIHW Board AIHW senior staff Annual report Capability statement Collaboration Customer care charter FOI - freedom of information Indexed list of files Organisation chart Presentations Privacy of data Public consultation Public Interest Disclosure Strategic Directions 2011-2014 Tenders
By category Ageing, disability & carers Families & children Hospitals Housing & homelessness Indigenous Australians Population groups Risk factors, diseases & death Services, workforce & spending
By subject Adoptions Aged care Ageing Alcohol & other drugs Arthritis & musculoskeletal conditions Asthma Australia's health Australia's welfare Burden of disease Cancer Cardiovascular disease Child health, development & wellbeing Child protection Children's services Chronic diseases
Chronic kidney disease Chronic respiratory conditions COPD Deaths Dementia Dental & oral health Diabetes Disability Expenditure Eye health Food & nutrition Health indicators Homelessness Hospitals Housing assistance Indigenous Australians Injury Life expectancy
Male health Mental health Mothers & babies National health priority areas Overweight & obesity Palliative care Population health Prisoner health Risk factors Rural health Safety & quality of health care Veterans' health Workforce Youth health & wellbeing Youth justice
In other sections Data Publications Contact AIHW
Publications CatalogueOrdering publicationsForthcoming publicationsOnline reportsRate our publication effectivenessSubscribe to release notices
By subject Adoptions Aged care Ageing Alcohol & other drugs Arthritis & musculoskeletal conditions Asthma Australia's health Australia's welfare Burden of disease Cancer Cardiovascular disease Child health, development & wellbeing Child protection Children's services Chronic diseases Chronic kidney disease
Chronic respiratory conditions Corporate publications Data linkage Data standards Deaths Dental & oral health Diabetes Disability Expenditure Eye health Food & nutrition General practice Health indicators Homelessness Hospitals Housing assistance Indigenous Australians Indigenous housing
Injury Life expectancy Male health Mental health services Mothers & babies National health priority areas Overweight & obesity Palliative care Population health Prisoner health Risk factors Rural health Safety & quality of health care Veterans' health Workforce Youth health & wellbeing Youth justice
In other sections Subjects Data Contact AIHW
About AIHW data METeOR—metadata online registry Data by subject Catalogue of holdings of AIHW data Customised data analysis request Data governance framework Data linking Data standards GovHack Privacy of data Accessing Australian Government health and welfare data
By subjectAboriginal and Torres Strait Islander Health Performance Framework Adoptions Aged care Alcohol and other drugs Alcohol data sources Body weight data sources Cancer Children's headline indicators (CHI) Chronic disease indicators Data sources for monitoring health conditionsDeaths Disability
Expenditure FHBH - Fixing houses for better health General practice (GP) data Height and weight data sources Hospitals Indigenous Australians International collaboration Maternity Information Matrix (MIM) Medical indemnity
Mental health National Aged Care Data Clearinghouse National core maternity indicators (NCMI) National indicator catalogue Perinatal data Risk factors statistics Specialist Homelessness Services (SHS) Tobacco data sources Workforce
In other sections Subjects Publications Contact AIHW
AACR ACFADD AHSAC AIHW Board AIHW Ethics Committee AODTS NMDS WG CKDMAC CMAG CSDWG CVDMAC HEAC HHIMG
IGIHM JJ RIG MHISSC NAGATSIHID NCIAG NCSIMG NDDWG NDIMG NHISSC NIAG NIRAPIMG NMDD
NMDS NMHPSC NOPSAD NPDDC NPHEP NPHIC PCDWG PDWG PHIDG PHIG REDWG Workforce committees YIAG
Education worksheets Infographics What's in the pipeline Subscribe to education notices Other educational links
Worksheets by subject All Latest Ageing Australia's health Australia's welfare Carers
Children & youth Disability Disease Drugs
Health Health prevention Indigenous Australians Injury
In other sections Subjects Data Publications Contact AIHW
Job vacancies How to apply for a position at the AIHW Conditions of employment Benefits of working for the AIHW Temporary employment register Occupational Training Program Contact the People Unit Graduates
AIHW Access magazine Media releases Subscribe to release notices Media FAQ Media contacts
You are here:
Cancer is a leading cause of burden of disease in Australia and has a major impact on individuals, families and the health care system. Cancer and screening data allow a better understanding of how cancer might be prevented, detected or treated, as well as a closer monitoring of outcomes and the effectiveness of policies, by answering the following questions:
The AIHW is part of three major organisations covering three important aspects of national, population-level cancer data:
The AIHW works in collaboration with the Australasian Association of Cancer Registries through the National Cancer Statistics Clearing House to disseminate national cancer data, support research based on these data, and to develop and improve cancer statistics generally.
In addition, the National Centre for Monitoring Cancer was established in 2009 to monitor cancer rates and their impacts and outcomes, as well as to identify and address priority gaps and deficiencies in population-level cancer and related data.
Organisations and data sources for national, population-level cancer and screening data in Australia
Note: Rectangles and dark arrows respectively represent organisations and relationships between them. Circles and light arrows respectively represent national cancer and screening data sources and the flow of data between them.
The major source of national population-based cancer data is the Australian Cancer Database (ACD), compiled at the AIHW from state and territory cancer registry data. The ACD is a national collection of about 1.9 million cancer cases diagnosed in Australia since 1982. Data in the ACD are used to report on cancer incidence, trends, projections, survival and prevalence, broken down by year of diagnosis, cancer type, sex, age and population subgroup.
The National Mortality Database (NMD) is used to report cancer mortality statistics and is maintained by the Population Health Unit of the AIHW. Mortality data are provided to the AIHW by state and territory Registrars of Births, Deaths and Marriages and are coded nationally by the Australian Bureau of Statistics. Data in the NMD are used to report on cancer mortality, trends and projections, broken down by year of death, cause of death, sex, age and population subgroup.
The AIHW reports on screening indicators including participation, cancer detection, sensitivity, ductal carcinoma in situ detection, recall to assessment and rescreening which are computed from de-identified unit record data or compiled from aggregated data provided by state and territory BreastScreen programs. Participation data are analysed by socio-demographic variables such as age, state and territory, geographic area, socioeconomic status, language spoken at home and Aboriginal and Torres Strait Islander status.
The AIHW reports on screening indicators including participation, rescreening, cytology and histology which are compiled from aggregated data provided by state and territory cervical cytology registries. Participation data are analysed by socio-demographic variables such as age, state and territory, geographic area and socioeconomic status.
The AIHW reports on data supplied from the National Bowel Cancer Screening Register maintained by Medicare Australia. As well as data on invitations and faecal occult blood test results which are managed by Medicare Australia, data are also collected from Assessment, Colonoscopy and Histopathology Report forms submitted by primary health care practitioners, colonoscopists, pathologists and other specialists. Data such as participation, screening (faecal occult blood test) outcomes and follow-up of positive test results are analysed by socio-demographic variables such as age, sex, state and territory, geographic area and socioeconomic status.
Other AIHW data collections used to report on various aspects of cancer include the National Hospital Morbidity Database, the Disease Expenditure Database and population data.
Outside the AIHW, other cancer data collections, while not population-based, record more detailed clinical, staging and treatment data. There is also a growing number of bio-specimen databases in Australia.