The National Diabetes Register (NDR) is a database that collects information about people who use insulin as part of their treatment for diabetes.
It includes persons who began using insulin for management of diabetes since 1 January 1999, and who have consented to be included in the NDR. These include persons using insulin to manage Type 1, gestational and Type 2 diabetes.
Objectives
The objectives of the Register are to:
- Collect information about new cases of insulin-treated diabetes mellitus (ITDM);
- Provide a sampling frame for scientifically valid and ethically approved epidemiological and clinical studies of ITDM and Type 1 diabetes;
- Monitor and report on the incidence of ITDM and Type 1 diabetes;
- Provide information to health service providers and planners at Commonwealth, State and local levels; and
- Assist in national diabetes monitoring.
The Register obtains information from two main data sources, the National Diabetes Services Scheme which is administered by Diabetes Australia, and from the Australasian Paediatric Endocrine Group (APEG) State-based registers. The APEG registers collect information about young people (less than 15 years of age) with diabetes.
Accessing NDR data for research
The Register is available for epidemiological research. To access the data researchers must review the National Diabetes Register Information Package (315KB PDF) and contact the NDR project officer at:
The Project Officer, National Diabetes Register
National Centre for Monitoring Diabetes
Australian Institute of Health and Welfare
GPO Box 570
Canberra ACT 2601
Email the National Diabetes Register:
Some research requests may require approval by the AIHW Ethics Committee and by the researcher's Ethics Committee.