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released: 18 Sep 2014 author: AIHW

Rich and robust data are needed for policy makers and practitioners to facilitate the prevention, early detection, diagnosis and treatment of dementia, as well as improving support for people with dementia and those who care for them. This paper provides an overview of the status of dementia data at the time of preparing the report Dementia in Australia (AIHW 2012a), and suggests ways in which the availability, consistency and quality of these data could be improved.

ISBN 978-1-74249-632-0; Cat. no. AGE 76; 44pp.; $10

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Publication table of contents

  • Preliminary material
    • Title and verso pages
    • Contents
    • Acknowledgments
    • Abbreviations
  • Body section
    • 1 Introduction
      • 1.1 Importance of dementia data in Australia
    • 2 Dementia data in Australia: sources
      • 2.1 National survey data
      • 2.2 Administrative data
      • 2.3 Longitudinal data
      • 2.4 Data integration
    • 3 Dementia data in Australia: current issues and gaps
      • 3.1 Prevalence, incidence, mortality and burden of disease data
      • 3.2 Characteristics of people with dementia
      • 3.3 Carers of people with dementia
      • 3.4 Health and aged care services usage
      • 3.5 Expenditure on dementia
      • 3.6 Summary
    • 4 Improving dementia data in Australia
      • 4.1 Improving data availability
      • 4.2 Improving data consistency and quality
      • 4.3 Improving data use
  • End matter
    • Appendix A: Additional tables
    • Appendix B: Proposed dementia data elements
    • References

Recommended citation

AIHW 2014. Improving dementia data in Australia: supplement to Dementia in Australia 2012. Cat. no. AGE 76. Canberra: AIHW.

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