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released: 7 Nov 2014 updated: 8 Jan 2015 author: AIHW: Bonello MR, Hilder L & Sullivan EA

Fetal Alcohol Spectrum Disorders (FASD) is emerging as a public health issue in Australia. Health-care providers and policy makers need accurate and timely data in a useable format to monitor and prevent FASD. This bulletin identifies ways to facilitate the collection and reporting of FASD-related information in Australia. The quality of information available in existing data collections is variable and incomplete for ascertaining cases of FASD. Regular surveillance and monitoring have been identified as priorities for determining incidence and prevalence.

ISBN 978-1-74249-656-6; Cat. no. PER 67; 14pp.; Internet Only


Publication table of contents

  • Preliminary material
    • Title and verso pages
    • Contents
    • Acknowledgments
    • Abbreviations
    • Summary
  • Body section
    • 1 Introduction
      • Purpose of this project
      • Project scope and methodology
      • FASD epidemiology
      • Diagnosis of FASD
      • Aetiology of FASD
    • 2 Review of current data collections
      • Methodology
      • Data collections reviewed
    • 3 Models for developing FASD data
      • Record linkage
      • Time-limited new collection
      • Enhancement of congenital anomalies registers
    • 4 Strategies to address gaps in FASD information
      • Development of diagnostic criteria for FASD
      • Improving clinical diagnosis of FASD
      • Monitoring maternal alcohol use
    • 5 The way forward
        • Data development
        • National data collection
        • Further research
  • End matter
    • References

Notes and corrections

The current version of the publication is presented above.

Previous versions of files that have been updated or corrected are presented below.

  1. (8 Jan 2015) On page 8, first sentence under heading Development of diagnostic criteria for FASD, updated.
    Previous version - Fetal alcohol spectrum disorders: strategies to address information gaps (2.4MB PDF)

Recommended citation

AIHW: Bonello MR, Hilder L & Sullivan EA 2014. Fetal alcohol spectrum disorders: strategies to address information gaps. Cat. no. PER 67. Canberra: AIHW. Viewed 18 August 2017 <http://www.aihw.gov.au/publication-detail/?id=60129549095>.

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