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released: 15 Dec 2006 author: AIHW

This report describes improvements to case ascertainment for the National Diabetes Register (NDR). The NDR is a register of people living in Australia with insulin-treated diabetes. The National Diabetes Services Scheme (NDSS) is one of the NDR's main data sources. Recent changes to the NDSS registration form have increased the notification of new cases to the NDR. This information paper describes the phasing-in of the new NDSS registration form and the resulting improvement in ascertainment for the NDR. It also provides information to help users of NDR data to understand the effects of the changed ascertainment so that the data can be appropriately used and interpreted, particularly for comparisons over time. It is therefore a valuable resource for researchers interested in using the NDR.

ISSN 1444-8033; ISBN 978 1 74024 637 8; Cat. no. CVD 35; 100pp.; Internet only

Full publication

Publication table of contents

  • Preliminary material (67KB PDF)
    • Title page and verso
    • Contents
    • Acknowledgements
    • Abbreviations
    • Glossary of terms
    • Executive summary
  • Sections (178KB PDF)
    1. Introduction
    2. Purpose
    3. Methods
    4. All NDR-eligible NDSS registrants
    5. Type 1 diabetes: 0-14 year olds
    6. Type 1 diabetes: 15-39 year olds
    7. Type 2 diabetes
    8. Gestational diabetes
    9. Other types of diabetes
    10. Summary of results and discussion
    11. Recommendations
  • End matter (296KB PDF)
    • Appendixes
      • Appendix A: Statistical tables
      • Appendix B: Definitions and algorithms
      • Appendix C: NDSS registration forms
    • References
    • List of tables
    • List of figures

Recommended citation

AIHW 2006. National Diabetes Register: impact of changed consent arrangements on ascertainment from the National Diabetes Services Scheme. Cat. no. CVD 35. Canberra: AIHW. Viewed 12 June 2013 <http://www.aihw.gov.au/publication-detail/?id=6442467927>.