Report on the pilot test of the community-based palliative care client data collection

Full publication

• Report on the pilot test of the community-based palliative care client data collection (1.6MB PDF)

Publication table of contents

• Preliminary material (156KB PDF)
  • Half title and verso pages
  • Title and verso pages
  • Contents
  • Acknowledgments
  • Abbreviations
  • Summary
• Sections
  1. Introduction (150KB PDF)
     • 1.1 Background
     • 1.2 Assessment of the feasibility of obtaining community-based palliative care data
     • 1.3 Development of the draft community-based palliative care client data set specification
     • 1.4 The proposed client data set specification
     • 1.5 Project management
  2. Pilot test methods (111KB PDF)
     • 2.1 Objectives of the pilot test
     • 2.2 Collection period
     • 2.3 Recruitment of agencies
     • 2.4 Eligible clients
     • 2.5 Community-based service contacts
     • 2.6 Data collection instruments
     • 2.7 Distribution and collation of data collection instruments
  3. Findings (259KB PDF)
     • 3.1 The pilot test sample
     • 3.2 Feedback about the pilot test processes
     • 3.3 Client consent
     • 3.4 Assessment of data items
     • 3.5 Ability of palliative care agencies to report the draft DSS

  4. Finalising the client data set specification (179KB PDF)

     • 4.1 Episodes of grief and bereavement counselling
     • 4.2 Service contact data
     • 4.3 Client/patient identifiers
     • 4.4 Statistical linkage of data
     • 4.5 Scope of the data collection
     • 4.6 Phased implementation
     • 4.7 Next steps
     • 4.8 Conclusions and summary of recommendations
• End matter
  • Appendixes
    • Appendix A: Palliative Care Data Working Group membership (83KB PDF)
    • Appendix B1: Privacy/consent statement (103KB PDF)
    • Appendix B2: Form A (Patient details) (213KB PDF)
    • Appendix B3: Form B (Episode of palliative care) (270KB PDF)

    • Appendix B4: Form C (Episode of palliative care service contact) (462KB PDF)

    • Appendix B5: Form D (Episode of grief and bereavement counselling) (424KB PDF)
    • Appendix B6: Feedback Form (240KB PDF)
  • References (85KB PDF)
  • List of tables (95KB PDF)
  • List of figures (82KB PDF)