Transitions in care of people with dementia: a systematic review of the literature
released: 28 Feb 2009 author: Runge C, Gilham J & Peut A
This systematic review assesses the evidence on the pathways people with dementia take into and through the health and aged care system, and the implications of these transitions for the quality of life of people with dementia and their families and carers. The review focuses on four distinct areas: predictors of care transition, description of care pathways, intervention to modify care pathways, and pathways taken by special population groups such as Aboriginal and Torres Strait Islander peoples.
Cat. no. AIHW 11074; 81pp.; Internet only
Full publication
Publication table of contents
- Preliminary material
- Title and verso pages
- Contents
- Abbreviations
- Summary
- Search strategies and results
- Findings
- Predictors of care transition
- Description of care pathways
- Intervention to modify care pathways
- Care pathways of special population groups
- Recommendations
- Acknowledgements
- Introduction
- Body section
- Background
- Care transitions and care pathways
- Australian service context
- Australia’s health and aged care system
- Services for people with dementia
- Movements through the health and aged care system
- Dementia and care pathways
- Dementia and its implications for service use and care pathways
- Service use by people with dementia in Australia
- Review Approach
- Inclusion and exclusion criteria
- Search methods
- Selection process
- Search terms that identified selected studies
- Country of origin
- Study quality
- Review of evidence
- Predictors of care transitions
- General studies of predictors of institutionalisation
- Focused studies of predictors of institutionalisation
- Dementia progression as a predictor of institutionalisation
- Behavioural Symptoms of Dementia as predictors of institutionalisation
- Caregiver and family characteristics as predictors of institutionalisation
- Service use & interventions as predictors of institutionalisation
- Predictors of care transition discussion
- Descriptions of care pathways and transitions
- Diagnosis
- Movements between care types
- End-of-life care and place of death
- Description of care pathways and transitions discussion
- Interventions to modify care transitions
- Caregiver counselling and support
- Caregiver training
- Multidisciplinary intervention
- Early intervention: family counselling and memory clinic
- Respite care
- Intervention to modify care transitions discussion
- Special population groups
- People with younger-onset dementia
- People from culturally and linguistically diverse backgrounds
- Aboriginal and Torres Strait Islander people
- People living in rural and remote areas
- Intellectual Disability and Dementia
- Special population groups discussion
- Key gaps in the evidence
- Recommendations
- For practice
- For further research
- End matter
- Appendixes
- Appendix 1
- Levels of evidence
- National Health & Medical Research Council designations of levels of evidence – Intervention, and prediction and prognosis studies (NHMRC 2000)
- Frameworks for assessing quality
- The Joanna Briggs Institute Critical Appraisal of a Systematic Review (JBI 2000)
- Dorothy Forbes’ External, Internal, and Statistical Conclusion Validity Rating Tool (Forbes 1998)
- Checklist for appraising the quality of studies of interventions (NHMRC 2000)
- Altman’s Framework for assessing internal validity of articles dealing with prognosis (Altman, 2001)
- Angus Forbes’ Appraisal Schedule (Forbes & Griffiths, 2002)
- Appendix 2
- Predictors of care transitions
- General studies of predictors of institutionalisation
- Focused studies of predictors of institutionalisation
- Dementia progression as a predictor of institutionalisation
- Behavioural Symptoms of Dementia as predictors of institutionalisation
- Service use and interventions as predictors of institutionalisation
- Descriptions of care pathways and transitions
- Diagnosis
- Movements between care types
- End-of-life care and place of death
- Interventions to modify care transitions
- Caregiver Counselling & Support
- Caregiver Training
- Multidisciplinary intervention
- Early intervention: family counselling and Memory Clinic
- Respite care
- Special population groups
- People with younger-onset dementia
- References
Recommended citation
Runge C, Gilham J & Peut A 2009. Transitions in care of people with dementia: a systematic review of the literature. Cat. no. AIHW 11074. Canberra: AIHW. Viewed 12 June 2013 <http://www.aihw.gov.au/publication-detail/?id=6442468216>.