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The use of lung function testing for the diagnosis and management of chronic airways disease
This demonstration data linkage study investigates the use of lung function testing in the diagnosis and management of chronic airways disease. It uses data from the 45 and Up Study linked to Medicare Benefits Schedule (MBS) and Pharmaceutical Benefits Scheme (PBS) data. The study shows that: - contrary to recommended guidelines, most study participants (82%) initiated on medications for managing their chronic airways disease did not have lung function testing performed within 12 months, either before or after their initial prescription - among respondents who reported having current asthma, lung function testing was only claimed for about one-quarter (26%) in a recent 3-year period and 12% had only 1 lung function test claim during that time.The evidence from this study will inform initiatives to help improve appropriate prescribing and health outcomes for people with chronic airways disease. This project also provides a demonstration of methods that could also potentially be used to fill evidence gaps associated with other chronic diseases such as diabetes, arthritis and cancer.
Young people in child protection and under youth justice supervision 2014–15
This report presents information on young people aged 10–17 who were both in the child protection system and under youth justice supervision in 2014–15; it demonstrates the insights that can be gained through data linkage. Two (2) in 5 (40.8%) young people in youth justice detention in 2014–15 were also in the child protection system that year. Those who were younger at their first youth justice supervision were more likely to also be in child protection.
Exploring drug treatment and homelessness in Australia: 1 July 2011 to 30 June 2014
There is much research to suggest a considerable overlap between people experiencing precarious housing, and drug and alcohol misuse. Linking client data from specialist homelessness services and alcohol and other drug treatment services, this report provides a picture of the intersection of these two issues on a national scale. It reveals a vulnerable population, in which Indigenous Australians and experiences of domestic and family violence and mental health issues were all over-represented. Their poorer drug treatment and housing outcomes highlight the level of difficulty faced in assisting these people to achieve long-term outcomes.
Young people in child protection and under youth justice supervision 2013–14
This report presents information on young people aged 10–17 who were involved in the child protection system and under youth justice supervision in 2013–14, and demonstrates the insights that can be gained through data linkage. Nearly half (45%) of young people in youth justice detention were also in the child protection system in the same year. Those who were younger at their first youth justice supervision were more likely to also be in child protection.
Radiotherapy in Australia: report on a pilot data collection 2013–14
In this report on the first pilot year collection of national radiotherapy data, data were received from 53 (out of 72) service locations across Australia. These services contributed information about 47,700 courses of radiotherapy delivered in 2013–14.For non-emergency treatment, 50% of patients started treatment within 13 days and 90% started within 33 days. For those who needed emergency treatment, 90% began treatment within the emergency timeframe.
Developing a linked data collection to report on the relationships between child protection and youth justice supervision
Using available national data to understand the characteristics of children and young people who are both in the child protection system and under youth justice supervision, and their pathways through these systems, would assist support staff, case workers and policy makers to achieve optimal outcomes for children and young people and for their families. This report describes how these data collections can be linked and how the relationships between child protection and youth justice supervision can be explored.
Exploring transitions between homelessness and public housing: 1 July 2011 to 30 June 2013
This report is the first of its kind produced by the AIHW linking homelessness and public housing data in order to better understand the clients of both. The report shows that specialist homelessness agencies were very successful in assisting clients to sustain their public housing tenancies.
Use of aged care services before death
This bulletin examines people’s use of aged care services in the 8 years before death, using the cohort of 116,481 people who died in 2010–11 aged at least 65. Overall, 80% of these people had used aged care in the 8 years before death, and three-fifths were aged care clients when they died. Just under half of the cohort began using aged care more than 4 years before their death.
An AIHW framework for assessing data sources for population health monitoring: working paper
When identifying potential data sources for population health monitoring, it is important to ensure they are 'fit-for-purpose'. This working paper outlines the Australian Institute of Health and Welfare’s 3-step process used to assess potential data sources for population health monitoring purposes.
Patterns in use of aged care: 2002-03 to 2010-11
While permanent care in a residential care facility remains a key service for many older Australians, in recent years greater emphasis has been placed on the provision of home-based support. This report examines how this shift has affected the way that people use aged care programs, and investigates the initial take-up of care. The analysis shows that use of aged care programs before entering permanent residential care is increasing, as is the use of any aged care services in a person’s last year of life.
People using both Disability Services and Home and Community Care in 2010-11: technical report
This report describes the linkage process used to identify the extent of joint use of Disability Services and the Home and Community Care program. The methods used to derive analysis variables are also described. Under one-fifth of Disability Service users also used HACC in 2010-11. The analysis of joint program use is presented in the companion report People using both Disability Services and Home and Community Care 2010–11.
Creating nationally-consistent health information: engaging with the national health information committees
This document provides guidance on engaging with the national processes responsible for health information and data standards. It has been developed to ensure data collected are consistent, accurate and useful for policy, planning and program management.
Report on the use of linked data relating to Aboriginal and Torres Strait Islander people
The Council of Australian Governments funded the Australian Institute of Health and Welfare and the Australian Bureau of Statistics to review past, ongoing and planned data linkage studies that have an Indigenous focus. This report reviews these data linkage activities and is a companion document to the National Best Practice Guidelines for Data Linkage activities relating to Aboriginal and Torres Strait Islander people.
Thematic list of projects using linked data relating to Aboriginal and Torres Strait Islander people
The Council of Australian Governments directed the Australian Institute of Health and Welfare and the Australian Bureau of Statistics to review past, ongoing and planned data linkage studies that have an Indigenous focus. This document thematically lists these data linkage activities, and is a companion document to the Report on the use of linked data relating to Aboriginal and Torres Strait Islander people.
Deriving key patient variables: a technical paper for the Hospital Dementia Services Project
This report describes the methods used for the Hospital Dementia Services Project to derive dementia status, complete hospital stays and post-hospital destination using New South Wales hospital data for 2006-07. Comparisons of estimates using these key variables show that the method used to derive the variables can substantially affect analytical results on use of hospitals. This report demonstrates the importance of using analytical data and methods that match the particular policy or research question being asked.
Children and young people at risk of social exclusion: links between homelessness, child protection and juvenile justice
Following the release of a study exploring the feasibility of linking three community-sector data collections, the Australian Institute of Health and Welfare was funded to link available child protection, juvenile justice and Supported Accommodation Assistance Program data. Analysis of the linked data shows that children and young people who are involved in one of these three sectors are more likely to be involved in another of the sectors than the general population. While the results are limited by data availability, the project highlights the valuable information that can be gained by data linkage.
Linking SAAP, child protection and juvenile justice data: technical report
Following the release of a study exploring the feasibility of linking three community-sector data collections, the Australian Institute of Health and Welfare was funded to link child protection, juvenile justice and Supported Accommodation Assistance Program data. This report describes the process used to link these collections. The analysis of the linked data is in a companion report, Children and young people at risk of social exclusion: links between homelessness, child protection and juvenile justice.
National best practice guidelines for data linkage activities relating to Aboriginal and Torres Strait Islander people: 2012
In 2008, the Council of Australian Governments (COAG) agreed to a set of targets for 'Closing the Gap' in disadvantage between Aboriginal and Torres Strait Islander and non-Indigenous Australians. Currently, progress is difficult to measure accurately because Indigenous status is either missing or inconsistently reported across data sets. To ensure a consistent approach to dealing with Indigenous status reporting, COAG directed the Australian Institute of Health and Welfare and the Australian Bureau of Statistics to develop national best practice guidelines for linking data related to Indigenous people. This report offers guidance on how to derive Indigenous status when it is missing or inconsistently reported, in a way that protects privacy and individuals' right to self-identification.
Principles on the use of direct age-standardisation in administrative data collections: for measuring the gap between Indigenous and non-Indigenous Australians
This report recommends that the direct method of age-standardisation be used for purposes of comparing health and welfare outcome measures (e.g. mortality rates, life expectancy, hospital separation rates, disease incidence rates etc.) of the Aboriginal and Torres Strait Islander population and non-Indigenous Australians. The report provides consistency and guidance on when and how to use the direct age-standardisation method and under what circumstances it should not be used.
Pathways in aged care: do people follow recommendations?
Eligibility for key aged care programs is assessed by Aged Care Assessment Teams (ACATs). These teams also make recommendations on the preferred long-term setting for receiving care; that is, in the person's home or in a residential care facility. Analysis shows that there was considerable variation in care pathways within recommendation group. Rates of transition into permanent residential care varied with the use of community care and residential respite care. One-quarter of ACAT clients-including some recommended to live in residential care-did not use aged care services in the 2 years after their first assessment.
Time trends and geographical variation in re-admissions for asthma in Australia
Re-admissions for asthma can be considered an indicator of health system performance in relation to the management of patients with asthma. This bulletin examines the overall rate of re-admissions for asthmas in Australian and investigates time trends in re-admissions for asthmas as well as differences according to age, sex, socioeconomic status and remoteness of residence.
Comparing an SLK-based and a name-based data linkage strategy: an investigation into the PIAC linkage
In 2005, the Institute was funded to create a linked aged care database to enable analysis of pathways through aged care services. The linkage strategy for the project involved using a Statistical Linkage Key (SLK) because of the lack of either a name or a common person identifier on the data sets being linked. This paper validates the results obtained using the SLK linkage strategy by comparing it directly with a name-based linkage strategy.
Pathways in Aged Care: program use after assessment
Analysis of care pathways provides information that is useful to both policy planners and service providers alike. The Pathways in Aged Care (PIAC) cohort study linked aged care assessment data for a cohort of 105,100 people to data sets showing use of five main aged care programs and deaths over 4 years. This report presents an overview of the PIAC cohort, investigating care needs, assessment patterns, common care pathways, time to entry to permanent residential aged care and time to death after assessment for use of aged care services.
Dementia and the take-up of residential respite care: an analysis using the PIAC cohort
In the current policy and service environment, respite care is a key service designed to provide support for carers and those they care for. Linked aged care program data for the Pathways in Aged Care (PIAC) cohort study allows analysis of the take-up of residential respite care by looking at 32,000 cohort members who had an approval of such care. This report presents detailed analysis of take-up rates and factors that affect the take-up of residential care. In particular the report investigates whether dementia, carer availability and English speaking background affect the take-up of residential care.
Dementia and the take-up of residential respite care
In the current policy and service environment respite care is a key service designed to provide support for carers and those they care for. Linked aged care program data for the Pathways in Aged Care (PIAC) cohort study allows analysis of the take-up of residential respite care by looking at 32,000 cohort members who had an approval of such care. This bulletin presents take-up rates and factors that affect the take-up of residential respite care. In particular, the bulletin investigates whether dementia, carer availability and English speaking background affect the take-up of residential respite care.
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