Publication list

Linking SAAP, child protection and juvenile justice data collections: a feasibility study

Data linkage series no. 5

Linking the SAAP, child protection and juvenile justice data collections would provide valuable information about the characteristics of people who are involved in one or more of these sectors. This information would support policies and programs aimed at implementing, monitoring and evaluating targeted intervention strategies. In this report, the feasibility of linking these three data collections is investigated. The authors conclude that linkage is technically feasible and that both the SAAP and juvenile justice data collections have data currently suitable for linkage. Linkage with the child protection data collection would be dependent on the successful implementation of the planned national minimum data set.

Authored by AIHW.

Published 13 June 2008; ISSN 1833-1238; ISBN-13 978 1 74024 789 4; AIHW cat. no. CSI 5; 36pp.; $24.00

Report on the pilot test of the community-based palliative care client data collection

This report outlines the need for a data set for community-based palliative care services that is relevant to national policy development and accountability, and provides details of a pilot test of the data set which aimed to evaluate the data items and their permissible values. This data set lays the foundation for the future agreement of a national minimum data set, which would see the collection of ongoing data about community-based palliative care clients for national collection and reporting. The data items within the draft client data set specification include items that relate to: the patient, the episode of palliative care, the episode of grief and bereavement counselling, and each service contact within these episodes.

Authored by AIHW.

Published 29 October 2007; ISBN-13 978 1 74024 714 6; AIHW cat. no. HWI 97; 106pp.; $27.00

National palliative care performance indicators: results of the 2006 performance indicator data collection

AIHW bulletin no. 54

This report presents the findings of the second national collection of performance indicator data from Australia's palliative care sector. The information collected was designed to support the calculation of four national performance indicators that were developed and agreed by representatives of the states and territories and the Australian Government on the Palliative care Intergovernmental Forum. The four performance indicators are based on the goals and objectives of the National Palliative Care Strategy and provide some information on the extent to which the Strategy has been implemented.

Authored by AIHW.

Published 3 September 2007; ISSN 1446-9820; ISBN-13 978 1 74024 719 1; AIHW cat. no. AUS 94; 28pp.; $10.00

Comparing name-based and event-based strategies for data linkage: a study linking hospital and residential aged care data for Western Australia

Data linkage series no. 3

In a feasibility study carried out in 2001 and 2002, the Institute developed a strategy for linking the hospital morbidity and residential aged care databases using date of birth, sex, region of usual residence and event dates. Doubts concerning the efficacy of the linkage strategy were raised at the time because of the lack of either a name or a common person identifier on the two datasets. This paper refines the event-based strategy and confirms its utility by comparing it directly with a name-based linkage strategy.

Authored by Karmel R & Rosman D.

Published 28 August 2007; ISSN 1833 1238; ISBN-13 978 1 74024 693 4; AIHW cat. no. CSI 3; 150pp.; $30.00

Cutting the red tape: preliminary paper detailing the problem of multiple entry and reporting by service providers

Many community service agencies deliver multiple programs and are funded through a variety of sources including local, state/territory and Australian governments, public fundraising and corporate philanthropy. There is considerable anecdotal evidence that these services, which deliver complex/whole-of-person services, have an increased administrative and reporting burden placed on them, as they are required to collect and report on the same or similar data multiple times. The aim of this research is to describe and validate the issue of this recording and reporting burden for these services and those who use them.

Authored by AIHW.

Published 14 November 2006; ISBN-13 978 1 74024 626 2; AIHW cat. no. HWI 92; 60pp.; $25.00

Data linkage protocols using a statistical linkage key

Data linkage series no. 1

This report examines the quality of the data available for undertaking statistical data linkage between the programs and describes the protocols followed to ensure that the privacy of individuals is not compromised. Practices that allow consistent linkage procedures to be used over time and across data sets are also outlined. A second report, Transitions Between Aged Care Services (AIHW: Karmel 2005), examines the validity of the links established via SLK-581 and analyses the resulting linked data.

Authored by Karmel R.

Published 8 November 2005; ISSN 1833 1238; ISBN-13 978 1 74024 511 1; AIHW cat. no. CSI 1; 72pp.; $23.00

Transitions between aged care services

Data linkage series no. 2

This report examines the extent of quarterly transitions between services using data linked deterministically via the statistical linkage key SLK-581. Basic descriptive statistics are provided for those making these transitions. Data relating to the period 1 April 2002 to 31 March 2003 were used. As with all projects using statistical data linkage within the AIHW, data linkage was carried out following examination and approval by the AIHW Ethics Committee. A previous report, Data Linkage Protocols Using a Statistical Linkage Key (AIHW: Karmel 2005), examined the quality of the data available for undertaking statistical data linkage between the programs and described the protocols followed to ensure that the privacy of individuals was not compromised. Practices that allow consistent linkage procedures to be used over time and across data sets were also outlined.

Authored by Karmel R.

Published 8 November 2005; ISSN 1833 1238; ISBN-13 978 1 74024 512 8; AIHW cat. no. CSI 2; 88pp.; $23.00