National Diabetes Register: impact of changed consent arrangements on ascertainment from the National Diabetes Services Scheme

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Diabetes series no. 5

This report describes improvements to case ascertainment for the National Diabetes Register (NDR). The NDR is a register of people living in Australia with insulin-treated diabetes. The National Diabetes Services Scheme (NDSS) is one of the NDR's main data sources. Recent changes to the NDSS registration form have increased the notification of new cases to the NDR. This information paper describes the phasing-in of the new NDSS registration form and the resulting improvement in ascertainment for the NDR. It also provides information to help users of NDR data to understand the effects of the changed ascertainment so that the data can be appropriately used and interpreted, particularly for comparisons over time. It is therefore a valuable resource for researchers interested in using the NDR.

Authored by AIHW.

Published 15 December 2006; ISSN 1444-8033; ISBN-13 978 1 74024 637 8; AIHW cat. no. CVD 35; 100pp.; $28.00


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Full publication (439K PDF)

  • Preliminary material (67K PDF)
    • Title page and verso
    • Contents
    • Acknowledgements
    • Abbreviations
    • Glossary of terms
    • Executive summary 
  • Sections (178K PDF)
    1. Introduction
    2. Purpose
    3. Methods
    4. All NDR-eligible NDSS registrants
    5. Type 1 diabetes: 0-14 year olds
    6. Type 1 diabetes: 15-39 year olds
    7. Type 2 diabetes
    8. Gestational diabetes
    9. Other types of diabetes
    10. Summary of results and discussion
    11. Recommendations
  • End matter (296K PDF)
    • Appendixes
      • Appendix A: Statistical tables
      • Appendix B: Definitions and algorithms
      • Appendix C: NDSS registration forms
    • References
    • List of tables
    • List of figures

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