Dementia in Australia: national data analysis and development

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Drawing together a wide range of data sources, the 'Dementia in Australia: national data analysis and development' report presents a profile of the Australian population with dementia, as well as discussing the characteristics and experiences of those caring for them. The report investigates current and projected prevalence and incidence of dementia, use of health and care services by those with dementia, and presents a new methodology for calculating expenditure on services associated with dementia. The evidence base about dementia in Australia is weakened by the variable quality and consistency of available data. The report also describes the sorts of data items recommended to improve the collection of dementia data.

Authored by AIHW.

Published 31 January 2007; ISBN-13 978 1 74024 639 2; AIHW cat. no. AGE 53; 335pp.; OUT OF PRINT

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Full publication (1.82M PDF)

  • Preliminary material (218K PDF)
    • Title page and verso
    • Contents
    • Acknowledgments 
    • Abbreviations
    • Overview
  • Section 1: Dementia definition, classifications and data sources (458K PDF)
    1. Introduction
      1. Background
      2. Purpose of this report
      3. Structure of this report
    2. Definition, diagnosis and classification of dementia
      1. Describing dementia
      2. Diagnosing dementia
      3. Defining and classifying dementia and its outcomes
      4. Conclusion
    3. Dementia data in Australian collections (318K PDF)
      1. Administrative collections
      2. Surveys
  • Section 2: Dementia data analysis
    1. Prevalence, incidence and burden of disease
      1. Summary
      2. Prevalence of dementia
      3. Prevalence by severity of dementia
      4. Incidence of dementia
      5. Burden of disease
    2. Characteristics of people with dementia (379K PDF)
      1. Introduction
      2. Identification of dementia
      3. Sociodemographic characteristics
      4. Nature of the dementia syndrome
      5. Disability, health and need for assistance
      6. Sources of care
      7. Conclusion
    3. Carers of people with dementia (303K PDF)
      1. What data are available?
      2. Carer availability
      3. Profile of carers
      4. The caring role
      5. Impact of the caring role on carers
      6. Support networks for carers
      7. Formal service use by carers
      8. Carer support and intervention
    4. Use of health and aged care services (371K PDF)
      1. General practice
      2. Pharmaceutical Benefits Scheme and Repatriation Pharmaceutical Benefits Scheme
      3. Aged Care Assessment Program
      4. Community care
      5. Residential aged care
      6. Hospitals - admitted patient services
    5. Expenditure on dementia (249K PDF)
      1. Health and aged care system expenditure on dementia for 2003
      2. Residential aged care services
      3. Hospital services
      4. Medical services
      5. Pharmaceuticals
      6. Community care services
      7. Projected expenditure
    6. Strengths and limitations of dementia data
      1. Introduction
      2. Limitations of existing data
      3. Strengths of data
      4. Future directions
  • Section 3: Dementia data development (459K PDF)
    1. Developing dementia data standards
      1. Purpose
      2. Principles of data development
      3. Data standards
      4. Constraints that impact upon the collection of dementia data elements
      5. Who provides the information?
    2. Comparison and mapping of data items
      1. Identifying people with dementia and cognitive impairment
      2. Severity of dementia and cognitive impairment
      3. Environmental factors
      4. Conclusion
    3. Improving dementia data
      1. Data development methodology
      2. Dementia data collection levels
      3. Proposed data elements
      4. Recommendations for future data development
  • End matter 
    • Appendix: Expenditure method (577K PDF)
    • Appendix tables
    • References
    • List of tables
    • List of figures
    • List of boxes

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