Therapy and equipment needs of people with cerebral palsy and like disabilities in Australia

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Disability series

This report considers the need for therapy and equipment among people with cerebral palsy and similar disabilities. Various sources of information have been used to examine the effectiveness of therapy and equipment, and the nature and extent of met and unmet need for therapy and equipment in Australia. Three estimates of the annual cost of meeting unmet need for therapy among people with cerebral palsy and like disabilities are provided.

Authored by AIHW & CP Australia.

Published 7 December 2006; ISSN 1444-3589; ISBN-13 978 1 74024 629 3; AIHW cat. no. DIS 49; 220pp.; $35.00

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Full publication (0.99M PDF)

  • Preliminary material (92K PDF)
    • Title page and verso
    • Contents
    • Abbreviations
    • Summary
    • Acknowledgments 
  • Sections
    1. Introduction (270K PDF)
      • Project objectives and partners
      • The service context: therapy and equipment
      • Project components and methods
      • Report outline
    2. Framework and foundations
      • Frameworks, concepts and definitions
      • Estimating unmet need: relating concepts to data
    3. Literature review
      • Definition and classification of cerebral palsy
      • Incidence of cerebral palsy
      • Survival rates and functional and health status
      • The nature of therapy
      • Frameworks for and approaches to therapy
      • Therapy across the lifespan
      • Effectiveness of therapy
    4. The population: people with cerebral palsy and like disabilities (309K PDF)
      • Population estimates of cerebral palsy and CP-like disabilities
      • Scoping of CP-like disabilities for population data analysis
      • Approaches to population estimates of CP-like disabilities and therapy and equipment needs
      • Other issues relating to the population estimates of CP-like disabilities
      • Comparisons of disability patterns and support needs
      • Conclusion
    5. Focus groups
      • Introduction
      • What is therapy?
      • Efficacy of therapy
      • What is equipment?
      • Efficacy of equipment
      • Determining need for therapy and equipment
      • Accessing therapy and equipment
      • Top three things that would change clients'/families' lives
    6. Clients and activities of CP agencies
      • Introduction
      • Commonwealth-State/Territory Disability Agreement National Minimum Data Set
      • Diagnosis and severity: data provided by CP Australia agencies
      • Unmet need for therapy and equipment: data from some CP Australia agencies
      • An ideal equipment scheme?
      • Summary
    7. National population data on needs for assistance  (300K PDF)
      • Profile of support needs for people with CP and like disabilities
      • Type of assistance provided and extent to which need for assistance met
      • Conclusion
    8. Archetypal cases
      • Introduction
      • Method
      • Qualitative analysis of archetypal cases
      • Quantitative analysis of archetypal cases
      • Costing the therapy regimes
      • Therapists' estimates of unmet need among clients
      • Equipment issues
      • Discussion
    9. Answering the main questions
      • Do therapy and equipment make a difference?
      • The nature of met and unmet needs for therapy and equipment
      • The extent of met and unmet needs for therapy
      • Indications of the extent of met and unmet need for equipment
      • Conclusions
  • End matter
    • Appendixes (346K PDF)
      • Appendix A Tables
      • Appendix B Technical appendix on the ABS 2003 Survey of Disability, Ageing and Carers
        • B.1 The survey
        • B.2 Disability
        • B.3 Long-term health condition
      • Appendix C Example case stories and therapy regimes
      • Appendix D Unit cost figures for the archetypal cases
      • Appendix E Archetypal cases professionals groups
    • References
    • List of tables
    • List of figures
    • List of boxes

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