Report on the pilot test of the community-based palliative care client data collection

$27.00

Phone, fax or email orders:

CanPrint
Tel. 1300 889 873
Fax 02 6293 8333
Email

View other publications by the same author: AIHW.

View other publications in the same subject areas: Data linkage, Ageing and aged care & Data standards.

This report outlines the need for a data set for community-based palliative care services that is relevant to national policy development and accountability, and provides details of a pilot test of the data set which aimed to evaluate the data items and their permissible values. This data set lays the foundation for the future agreement of a national minimum data set, which would see the collection of ongoing data about community-based palliative care clients for national collection and reporting. The data items within the draft client data set specification include items that relate to: the patient, the episode of palliative care, the episode of grief and bereavement counselling, and each service contact within these episodes.

Authored by AIHW.

Published 29 October 2007; ISBN-13 978 1 74024 714 6; AIHW cat. no. HWI 97; 106pp.; $27.00

View online for free

Full publication (1.6MB PDF)

  • Preliminary material (156KB PDF)
    • Half title and verso pages
    • Title and verso pages
    • Contents
    • Acknowledgments
    • Abbreviations
    • Summary
  • Sections
    • 1 Introduction (150KB PDF)
      • 1.1 Background
      • 1.2 Assessment of the feasibility of obtaining community-based palliative care data
      • 1.3 Development of the draft community-based palliative care client data set specification
      • 1.4 The proposed client data set specification
      • 1.5 Project management
    • 2 Pilot test methods (111KB PDF)
      • 2.1 Objectives of the pilot test
      • 2.2 Collection period
      • 2.3 Recruitment of agencies
      • 2.4 Eligible clients
      • 2.5 Community-based service contacts
      • 2.6 Data collection instruments
      • 2.7 Distribution and collation of data collection instruments
    • 3 Findings (259KB PDF)
      • 3.1 The pilot test sample
      • 3.2 Feedback about the pilot test processes
      • 3.3 Client consent
      • 3.4 Assessment of data items
      • 3.5 Ability of palliative care agencies to report the draft DSS
    • 4 Finalising the client data sets pecification (179KB PDF)
      • 4.1 Episodes of grief and bereavement counselling
      • 4.2 Service contact data
      • 4.3 Client/patient identifiers
      • 4.4 Statistical linkage of data
      • 4.5 Scope of the data collection
      • 4.6 Phased implementation
      • 4.7 Next steps
      • 4.8 Conclusions and summary of recommendations
  • End matter
    • Appendixes
      • Appendix A: Palliative Care Data Working Group membership (83KB PDF)
      • Appendix B1: Privacy/consent statement (103KB PDF)
      • Appendix B2: Form A (Patient details) (213KB PDF)
      • Appendix B3: Form B (Episode of palliative care) (270KB PDF)
      • Appendix B4: Form C (Episode of palliative care service contact) (462KB PDF)
      • Appendix B5: Form D (Episode of grief and bereavement counselling) (424KB PDF)
      • Appendix B6: Feedback Form (240KB PDF)
    • References (85KB PDF)
    • List of tables (95KB PDF)
    • List of figures (82KB PDF)