Report on the pilot test of the community-based palliative care client data collection

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This report outlines the need for a data set for community-based palliative care services that is relevant to national policy development and accountability, and provides details of a pilot test of the data set which aimed to evaluate the data items and their permissible values. This data set lays the foundation for the future agreement of a national minimum data set, which would see the collection of ongoing data about community-based palliative care clients for national collection and reporting. The data items within the draft client data set specification include items that relate to: the patient, the episode of palliative care, the episode of grief and bereavement counselling, and each service contact within these episodes.

Authored by AIHW.

Published 29 October 2007; ISBN-13 978 1 74024 714 6; AIHW cat. no. HWI 97; 106pp.; $27.00

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Report on the pilot test of the community-based palliative care client data collection (1.6MB PDF)

Publication table of contents

Preliminary material (156KB PDF)
- Half title and verso pages
- Title and verso pages
- Contents
- Acknowledgments
- Abbreviations
- Summary
Sections
1. Introduction (150KB PDF)
  - 1.1 Background
  - 1.2 Assessment of the feasibility of obtaining community-based palliative care data
  - 1.3 Development of the draft community-based palliative care client data set specification
  - 1.4 The proposed client data set specification
  - 1.5 Project management
2. Pilot test methods (111KB PDF)
  - 2.1 Objectives of the pilot test
  - 2.2 Collection period
  - 2.3 Recruitment of agencies
  - 2.4 Eligible clients
  - 2.5 Community-based service contacts
  - 2.6 Data collection instruments
  - 2.7 Distribution and collation of data collection instruments
3. Findings (259KB PDF)
  - 3.1 The pilot test sample
  - 3.2 Feedback about the pilot test processes
  - 3.3 Client consent
  - 3.4 Assessment of data items
  - 3.5 Ability of palliative care agencies to report the draft DSS
4. Finalising the client data set specification (179KB PDF)
  - 4.1 Episodes of grief and bereavement counselling
  - 4.2 Service contact data
  - 4.3 Client/patient identifiers
  - 4.4 Statistical linkage of data
  - 4.5 Scope of the data collection
  - 4.6 Phased implementation
  - 4.7 Next steps
  - 4.8 Conclusions and summary of recommendations
End matter