Table of contents

  • Preliminary material
    • Title and verso pages
    • Contents
    • Acknowledgments
    • Abbreviations
    • Summary
  • Body section
  • 1 Introduction
    • 1.1 Background
    • 1.2 Policy context
    • 1.3 National agenda for data linkage
    • 1.4 Related data linkage projects
      • Building national linkage capability to the AEDC project
      • Proof of Concept project 3
      • Transforming Education and Training Information in Australia
      • National Education Data Linkage Roadmap
    • 1.5 Structure of this report
  • 2 The National Early Childhood Development Researchable Data Set
    • 2.1 Aim, value and benefits
      • Aim of the NECD RDS
      • Benefits to governments, policy makers and program developers
      • Benefits to the public
      • Questions that the NECD RDS may help answer
    • 2.2 Scope and design
      • Research foundations of the NECD RDS
      • Data to be included
      • Documenting available data
    • 2.3 Data linkage
      • Practice and protocols
      • Protecting privacy
  • 3 Governance framework for the researchable data set
    • 3.1 Privacy considerations
      • AIHW legislative framework-privacy and confidentiality
    • 3.2 Ethical considerations
      • Human Research Ethics Committees
      • AIHW Ethics Committee
    • 3.3 Stakeholder engagement
    • 3.4 NECD RDS Advisory Committee
  • 4 Challenges and progress in establishing the researchable data set
    • 4.1 Challenges encountered
      • Stakeholder engagement
      • Jurisdictional linkage capabilities
      • Ongoing nature of the NECD RDS
      • Changes to process for generating linkage keys
      • Privacy constraints for preschool data
      • Incomplete data
      • Barriers to obtaining data
      • Other data linkage projects
    • 4.2 Obtaining permission to use data for the NECD RDS
      • Commonwealth data sets
      • Jurisdictional data sets
      • Summary of progress
      • Receiving data for inclusion in the NECD RDS
      • Supply and updating of data
  • 5 Moving forward
    • 5.1 Where are we now?
    • 5.2 Next steps
    • 5.3 After the NECD RDS is established
      • Stakeholder consultations and meetings
      • Access to the NECD RDS
      • Updating the NECD RDS
      • Data analysis
      • METeOR
  • End matter
    • Appendixes
      • Appendix A: Childhood development research
        • A.1 The review process
        • A.2 Results of mapping
      • Appendix B: Data sources to support the NECD RDS
        • B.1 Data included in the NECD RDS
        • B.2 Data to support the NECD RDS
      • Appendix C: Data items for inclusion
      • Appendix D: Processes to construct the NECD RDS
        • D.1 Linking data to construct the NECD RDS
        • D.2 Merging content data for the NECD RDS
      • Appendix E: Guide for researchers
        • E.1 Access to data for researchers
        • E.2 Access options
        • E.3 AIHW contact details
    • Glossary
    • References
    • List of tables
    • List of figures
    • List of boxes