Key reporting indicators

Table 5: Acute rheumatic fever and rheumatic heart disease key reporting indicators, 2012 guidelines

1. Epidemiology

Indicator

Recommended disaggregations

1.1 Yearly age-specific incidence rates of all episodes, and of first episodes of ARF according to

1.1.1 Sex

1.1.2 Ethnicity

1.2 Proportion of all recorded ARF episodes classified as recurrences

..

1.3 Rates of ARF recurrences per 100 patient-years

..

1.4 Number of deaths and age-standardised rates of mortality due to ARF and RHD in the previous calendar year by ethnicity

..

1.5 Yearly age-specific and overall incidence of RHD by ethnicity and broken down by method found and presented

..

1.6 Yearly age-specific prevalence of RHD, by ethnicity

..

1.7 Proportion of newly registered cases of ARF or RHD with an initial recorded diagnosis being established RHD (rather than ARF)

..

2. Requirement and uptake of secondary prophylaxis

Indicator

Recommended disaggregations

2.1 Proportion of all people indicated for secondary prophylaxis* who are registered to receive benzathine penicillin G (BPG).

..

2.2 Median percentage of all scheduled BPG doses actually delivered

..

2.3 Proportion of people indicated for BPG secondary prophylaxis who received <50%, 50-79%, and ≥80% of scheduled doses in the previous calendar year

..

3. Quality of management

Indicator

Recommended disaggregations

3.1 Proportion of all registered ARF and RHD cases classified as mild, moderate, severe and inactive

..

3.2 Proportion of people classified as moderate or severe RHD who had an echocardiogram within the previous 6 months, 1 year, and 1-2 years

..

3.3 Number of cases, and proportion of total cases indicated for cardiac surgery, who have been waiting <6 months, 6-11 months, 12-23 months, or 24+ months

..

3.4 Number and type of surgical procedures performed during the previous calendar year by

3.4.1 Age group

3.4.2 Ethnicity

3.5 Number (and proportion) of people who died in the previous calendar year within 28 days and 1 year of undergoing rheumatic cardiac surgery by

3.5.1 Age group

3.5.2 Ethnicity

* If denominator of those indicated for prophylaxis not known, use people with a history of ARF within the last 10 years, or, ARF and RHD and aged < 21 years, or, aged ≥21 years with moderate or severe RHD.

Source: RHD Australia (ARF/RHD writing group) 2012.