Jurisdictional RHD control programs and registers

Under the Rheumatic Fever Strategy, the Australian Government provides funding to support RHD control programs in four jurisdictions: Queensland, Western Australia, South Australia and the Northern Territory.

These programs are funded to:

  • improve clinical care, including improved delivery of and adherence to secondary prophylaxis antibiotics
  • provide education and training for health care providers, individuals, families and communities
  • collect and provide agreed data annually to the AIHW for national monitoring and reporting of ARF and RHD and measuring program effectiveness in the detection and management of ARF and RHD
  • maintain a dedicated state-wide patient register and recall system for ARF and RHD.

Information from the ARF/RHD registers in these four jurisdictions is compiled by the Australian Institute of Health and Welfare (AIHW) to provide information about ARF and RHD in Australia. The Australian ARF/RHD guideline describes a set of indicators recommended for monitoring ARF and RHD. This web-report presents data on those indicators that are currently able to be reported, including characteristics of people with ARF and RHD, geographic distribution of people with diagnoses, delivery of secondary prevention and use of surgical interventions.

Although an RHD control program and register also operates in New South Wales, this program is not currently covered under the Rheumatic Fever Strategy. The NSW register was established in 2016, with ARF and RHD becoming notifiable in NSW in 2015, and RHD being notifiable only in persons aged less than 35 years. Data from NSW are presented in detail in a standalone section.

Reference

RHD Australia, (ARF/RHD writing group). The 2020 Australian guideline for the prevention, diagnosis and management of acute rheumatic fever and rheumatic heart disease (3rd edn). Northern Territory: RHD Australia, Menzies School of Health Research.