Data sources and data gaps

The data sources with relevant data items on patient experiences and with data available on Indigenous Australians were:

  • ABS National Aboriginal and Torres Strait Islander Social Survey, 2014-15,
  • ABS Australian Aboriginal and Torres Strait Islander Health Survey, 2012-13
  • AIHW National Hospital Morbidity Database
  • New South Wales Adult Admitted Patient Survey 2014 and 2017
  • Queensland Maternity Outpatient Clinic Patient Experience Survey 2015 and 2017.

Patient experience of health care – measures, data sources and data gaps

2.1 Communication

  • Felt listened to and understood
  • Information provided in a way that could be understood
  • Interpreter services were offered

2.2 Interpersonal treatment

  • a) Respect and trust
    • Treated respectfully
    • Had trust and confidence
    • Staff were polite and courteous
    • Respect for cultural or religious beliefs
  • b) Racism and discrimination
    • Treated badly, unfairly, discriminated against
    • Avoided health care due to poor treatment
    • Did not access health care due to cultural reasons

2.3 Empowerment

  • Involved in health care decisions
  • Provided with information about patient rights

2.4 Inclusion

  • Family members were informed
  • Family members were included

2.5 Take own leave

  • Incomplete emergency attendances
  • Discharged self from hospital against medical advice

Notes:

Australian Aboriginal and Torres Strait Islander Health Survey Australian Aboriginal and Torres Strait Islander Health Survey

NHMD – National Hospital Morbidity Database; NNAPEDC – National Non-admitted Emergency Department Care DatabaseNational Hospital Morbidity Database, National Non-admitted Emergency Department Care Database

NSW Adult Admitted Patient SurveyNSW Adult Admitted Patient Survey (AAPS)

Queensland Maternity Outpatient Clinic Experience SurveyQueensland Maternity Outpatient Clinic Experience Survey (MOCES)

No data source available for the momentNo data source available for the moment

The two national survey data sources were the ABS Aboriginal and Torres Strait Islander Health Survey and the National Aboriginal and Torres Strait Islander Social Survey. These surveys include data that relate to the communication and interpersonal treatment domains. The national ABS Patient Experience Survey (PES), which includes data related to communication and respectful treatment by general practitioners, are not available by Indigenous status.

Most jurisdictions undertake surveys about patients’ experiences in public hospitals, but there was not a lot of publically released data on Indigenous patients. Data are reported for New South Wales from the Adult Admitted Patient Survey of those who have recently been admitted to a NSW public hospital. There were 550 Aboriginal people who responded to the 2017 survey and 2,682 who responded to a special survey in 2014. The Queensland Maternity Outpatient Clinic Patient Experience Survey includes Aboriginal and Torres Strait Islander specific questions.  Data on Aboriginal and Torres Strait Islander women are available from the 2015 (350 women) and 2017 (390 women) surveys. There was also some 2015 publically available data for Victoria from the Health Experiences Survey, but the numbers of Indigenous clients was relatively small so this was not included.

The two final measures in this module for take own leave used data from the national hospitals and national emergency care data collections.

Data gaps

Major data gaps in this module are the lack of hospital patient experience data from most jurisdictions, as well as data on patients of non-hospital health care services such as primary health care and specialist services. Regular, national data collections on patient experiences are needed to enable monitoring of the impact of government initiatives and measuring of progress in achieving cultural safety. Such data collections should allow for reporting across small areas and in different health sectors.