Table of contents

  • Preliminary material 
    • Title and verso pages
    • Contents
    • List of tables
    • List of figures
    • Acknowledgments
    • Abbreviations
    • Executive summary
    • Purpose
    • Main findings
    • Recommendations
  • Sections
    1. Introduction 
      1. Background
      2. The Palliative Care Information Development project
    2. Data collection systems 
      1. Current systems
      2. Future directions
    3. Current data reporting 
      1. Reporting in each state and territory
      2. Mapping of data items
      3. Other possible sources of palliative care data
    4. Consultation with service providers 
      1. Approach
      2. Background/discussion paper
      3. Outcomes of the consultation
      4. Providers' suggestions on quality of care indicators
      5. Lessons from the consultation feedback
    5. Feasibility and performance monitoring 
      1. Purpose
      2. Scope
      3. Data items for collection
      4. Collection mechanisms
      5. Timeframe
      6. Evaluation and performance indicators
    6. A national community-based palliative care data collection
      1. Proposed characteristics of a national data collection
      2. Recommended data set and draft definitions
      3. Strategies for data collection and transfer
    7. Options and recommendations for future national data collection 
      1. A way forward
      2. Other options considered
  • End matter
    • Appendix 
      • Appendix A: Palliative Care Intergovernmental Forum-Information Development Principles
      • Appendix B: PalCID WG members
      • Appendix C: Data collection systems
        • Australian Capital Territory
        • New South Wales
        • Northern Territory
        • Queensland
        • South Australia
        • Tasmania
        • Victoria
        • Western Australia
      • Appendix D: Mapping exercise
      • Appendix E: Service provider feedback sheet
      • Appendix F: National Health Performance Framework
      • Appendix G: Reporting requirements and sample reports provided by some States and Territories
      • Appendix H: Data definitions
      • Glossary
      • References