Summary

Endometriosis is a chronic condition that can be painful, affect fertility and lead to reduced participation in school, work and sporting activities.

Prevalence of endometriosis

A historically under-recognised condition, diagnosis of endometriosis is often delayed, with an average of between 6 and 8 years between onset of symptoms and diagnosis. However in recent years, prevalence estimates suggest that women are being diagnosed with endometriosis at earlier ages. This increase may reflect increased awareness of endometriosis among the general public and health professionals, leading to increased diagnosis and/or reporting of diagnosis among women born more recently.

Around 1 in 7 (14%) women born in 1973–78 were estimated to have been diagnosed with endometriosis by age 44–49.

By age 31, 9.2% of women born in 1989–95 had been diagnosed with endometriosis compared with 6.9% of women born in 1973–78.

See How common is endometriosis? for more information.

Burden of disease due to endometriosis

The health loss from living with illness and injury caused by endometriosis is measured as the non-fatal burden, or years lived with disability (YLD) due to endometriosis.

The rate of YLD for endometriosis has increased from 0.5 per 1,000 females in 2003 to 0.7 in 2024, after adjusting for differences in age structure over time.

Endometriosis remains the third leading cause of non-fatal disease burden among females due to reproductive and maternal conditions, after genital prolapse and polycystic ovarian syndrome.

See Burden of disease for more information.

Health system spending on endometriosis

Health system spending comprises estimated costs from hospital services, primary health care and referred medical services which can be attributed to treating endometriosis.

An estimated $293 million was spent on endometriosis in the Australian health system in 2022–23.

Since 2013–14, total spending on endometriosis has more than doubled from $142 million to $293 million in 2022–23.

See Health system expenditure for more information.

Hospitalisations due to endometriosis

Almost all (95%) endometriosis-related hospitalisations involved a procedure. Surgical procedures used in the treatment of endometriosis include the removal of lesions via laparoscopy (key-hole surgery) or laparotomy (abdominal surgery), and in severe cases, removal of the uterus (hysterectomy) or parts of the bowel. 

In 2022–23 there were 44,200 endometriosis-related hospitalisations.

This represents 335 hospitalisations per 100,000 females, up from 250 in 2012–13.

Hospitalisation rates doubled among females aged 20–24, from 325 hospitalisations per 100,000 females in 2012–13 to 650 per 100,000 in 2022–23.

In 2022–23, age-standardised rates of endometriosis-related hospitalisations were highest among:

Non-Indigenous Australians – 1.2 times the rate for First Nations women.

Females living in the least disadvantaged socioeconomic areas – 1.3 times the rate in the most disadvantaged areas.

Females living in Major cities of Australia – 1.5 times the rate for those living Remote and very remote areas.

In 2022–23, most endometriosis-related hospitalisations:

Lasted 2 days or less, with 44% being same-day hospitalisations.

Were partly or fully funded by private health insurance (57%).

Took place in a private hospital (65%).

See Hospitalisations for more information.

Emergency department presentations due to endometriosis

Emergency departments (EDs) provide urgent care for symptoms of endometriosis, such as severe pain and bleeding. People presenting to the ED with symptoms of endometriosis before they have received a diagnosis are likely to be recorded as having other symptom-based diagnoses, such as abdominal and pelvic pain or heavy bleeding.

In 2023–24 there were 4,800 endometriosis-related ED presentations.

Where endometriosis was the main reason for attending the ED, the rate of presentations increased slightly from 29 per 100,000 females in 2018–19 to 32 per 100,000 in 2023–24.

Three-quarters (76%) of ED presentations were triaged as needing to be seen within 30 minutes or less.

See Emergency department presentations for more information.