AIHW (Australian Institute of Health and Welfare) (2020) Dementia data gaps and opportunities, AIHW, Australian Government, accessed 24 June 2026, doi:10.25816/xmer-mr26.
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Persistent gaps in national data limit monitoring and reporting on dementia in Australia. Linking administrative data is helping overcome data limitations associated with determining the prevalence of dementia, and investment in a national dementia registry could deliver a world-class monitoring program over the longer term. The report discusses current dementia data gaps and identifies ways in which these gaps can be systematically and strategically addressed.
An aged care data improvement plan and a national data development plan for dementia are needed to address data gaps
A key data gap for dementia is the lack of primary and secondary care data with dementia diagnosis information
Australia is lacking comprehensive data on dementia in the Aboriginal and Torres Strait Islander population
There is under-reporting and/or inconsistent coding of dementia in key data assets
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