Table of contents
- Preliminary material (156KB PDF)
- Half title and verso pages
- Title and verso pages
- Contents
- Acknowledgments
- Abbreviations
- Summary
- Sections
- Introduction (150KB PDF)
- 1.1 Background
- 1.2 Assessment of the feasibility of obtaining community-based palliative care data
- 1.3 Development of the draft community-based palliative care client data set specification
- 1.4 The proposed client data set specification
- 1.5 Project management
- Pilot test methods (111KB PDF)
- 2.1 Objectives of the pilot test
- 2.2 Collection period
- 2.3 Recruitment of agencies
- 2.4 Eligible clients
- 2.5 Community-based service contacts
- 2.6 Data collection instruments
- 2.7 Distribution and collation of data collection instruments
- Findings (259KB PDF)
- 3.1 The pilot test sample
- 3.2 Feedback about the pilot test processes
- 3.3 Client consent
- 3.4 Assessment of data items
- 3.5 Ability of palliative care agencies to report the draft DSS
- Finalising the client data set specification (179KB PDF)
- 4.1 Episodes of grief and bereavement counselling
- 4.2 Service contact data
- 4.3 Client/patient identifiers
- 4.4 Statistical linkage of data
- 4.5 Scope of the data collection
- 4.6 Phased implementation
- 4.7 Next steps
- 4.8 Conclusions and summary of recommendations
- Introduction (150KB PDF)
- End matter
- Appendixes
- Appendix A: Palliative Care Data Working Group membership (83KB PDF)
- Appendix B1: Privacy/consent statement (103KB PDF)
- Appendix B2: Form A (Patient details) (213KB PDF)
- Appendix B3: Form B (Episode of palliative care) (270KB PDF)
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Appendix B4: Form C (Episode of palliative care service contact) (462KB PDF)
- Appendix B5: Form D (Episode of grief and bereavement counselling) (424KB PDF)
- Appendix B6: Feedback Form (240KB PDF)
- References (85KB PDF)
- List of tables (95KB PDF)
- List of figures (82KB PDF)
- Appendixes