Excluded data sources
Several additional data sources were identified or suggested by stakeholders through the consultation process. These are listed alphabetically in Table 11 along with a brief rationale for their exclusion.
Data source | Rationale for exclusion |
|---|---|
Currently excludes younger populations(a) and is not nationally representative – NSW only. | |
Endometriosis and Pelvic Pain Clinic (EPPC) Minimum Dataset | Sample not representative, not suitable for population monitoring or monitoring care pathways as it only measures a small proportion of contact with specific health services. |
Not nationally representative (only 3 Eastern states) and ongoing monitoring of trends is not possible (cross-sectional one-off study conducted in 2016–17) but will be considered for reporting contextual or supplementary information. | |
Longitudinal Study of Teenagers with Endometriosis, Period and Pelvic Pain (LongStePPP) | Small sample size, may be valuable for analyses of risk factors, interventions and outcomes, but (due to small sample size) not suitable for population monitoring or monitoring care pathways. |
The MenoDoctor Survey was a one-off survey which allowed participants to self-select. As such, there may be bias. | |
National Endometriosis Clinical and Scientific Trials (NECST) Registry | Registry for endometriosis and pelvic pain. Not nationally representative, small sample size. |
Not nationally representative, ACT and surrounding regions only. | |
Not nationally representative, Western Australia only. Small sample size (less than 3,000) making it less generalisable to people living in Australia. | |
Not nationally representative, ACT or surrounding region only. Participants also self-select and as such, there may be bias. | |
SWASH survey of lesbian, bisexual, queer and other non-heterosexual identifying women engaged with LGBTIQ communities | Not nationally representative. |
Not nationally representative, Victoria only. | |
Currently excluded as it’s not nationally representative. Participants also self-select and there may be bias. May be explored for future reporting. | |
Not nationally representative, Metropolitan Melbourne region only. |
(a) Intended to be expanded to younger age groups (18 and up); may be explored in future reporting due to large sample size.