Appendix C: Codes used to identify services and disease trajectories
| Type of services | Data source | Item and other codes |
|---|---|---|
| Aged care services | ||
| Residential aged care | NHDH NAC_RAC_EPI data table | ‘Admission_type’ is “Permanent” |
| Respite | NHDH NAC_RAC_EPI data table | ‘Admission_type’ is “Respite” |
| Home care | NHDH NAC_HCP_EPI and NAC_HCP_REC_CARE_LVL data tables | Highest home care package level recorded for each individual in ‘entry’, ‘current’ or ‘revised’ care level variables |
| Specialist palliative care | ||
| Inpatient hospital care | NHDH AP_CONTENT (Hospital Admitted Patient Care) | Care type: 3 (palliative care) or principal or additional diagnosis: Z51.5 |
| Outpatient clinics | NHDH NAP_CONTENT (Non-Admitted Patient episodes) | Outpatient clinic type tier: 20.13 |
| Consultations with palliative care specialists | NHDH Medicare Benefits Schedule (MBS) | Medicare service provider specialty codes (SPR_REG_SPEC): 043, 077 |
End-of-life disease trajectory | Cause of death | ICD-10 cause of death codes |
|---|---|---|
Cancer | Malignant neoplasms | C00-C97 |
| Benign neoplasms | D00-D09, D32, D33, D37-D48 |
Organ failure | Heart disease, including cerebrovascular disease | I231, I25, I27, I42, I50–I51, I60-I69, I70, I73- I74, I978 |
| Renal failure | N02-N05, N12, N18-N19, N25, N312, N319, N82 |
| Liver disease | K70-K77 |
| Respiratory disease | J40-J44, J47, J60-J62, J701, J80, J841, J96, J980-J984 |
| Diabetes | E10-E14 |
| Musculoskeletal system diseases | M05-M06, M13, M15, M360, M361, M13, M15, M21, M30-M54, M80, M81, M844, M86-M88 |
| Diseases of the blood | D61, D69, D70, D758, D86 |
| Diseases of the digestive system | K44, K50, K51, K55, K56, K85-K90 |
| Other | A523, A810, A812, B15-B19, B20-B24, E70-E72, E75- E77, E85, L40, L93, Q01-Q06, Q20-Q28, Q60- Q68, Q75-Q79, Q850, Q87-Q90, Q99, R060, R063-R068 |
Frailty and dementia | Alzheimer’s, dementia, and other mental disorders | F01-F06, G30-G32 |
| Diseases of the nervous system | G03-G05, G07, G10-G12, G20-G23, G35-G37, G478, G518, G551, G608, G80-G83, G90-G99 |
ICD-10 = International Classification of Diseases, 10th Revision.
Note: In this report, HIV/AIDS is grouped into “Other” in organ failure disease trajectory to preserve confidentiality (due to small counts).
Sources: INSPQ 2006; ONFV 2011
INSPQ (2006). Soins palliatifs de fin de vie au Québec : définition et mesure d’indicateurs. Partie 1: population adulte (20 ans et plus). Québec City, Canada: Institut national de santé publique du Québec.
ONFV (2011). Estimation du nombre de personnes nécessitant des soins palliatifs en France. In: Observatoire National de la Fin de Vie (ONFV), ed. Fin de vie : un premier état des lieux. Paris92–107.