About
The Australian, state and territory governments are working together with the disability community to design and govern the National Disability Data Asset initiative. More information about the National Disability Data Asset initiative is available at National Disability Data Asset website.
The Australian Institute of Health and Welfare (AIHW) Ethics Committee has advised the establishment and operation of the National Disability Data Asset systems are compliant with the requirements of the National Statement of Ethical Conduct in Human Research 2023 and the Privacy Act 1988. Details of the AIHW ethics approvals for the project and the pilot test cases are provided at Approved projects and status.
The National Disability Data Asset system went through 2 years of development and testing called the Pilot. The Pilot tested how to best link data to understand outcomes for people with disability, while protecting people’s privacy. The Pilot was delivered jointly by the AIHW, the Australian Bureau of Statistics (ABS), the Department of Social Services (DSS), the Department of the Prime Minister and Cabinet (PM&C), the National Disability Insurance Agency (NDIA) and the governments of the Australian Capital Territory, New South Wales, Victoria, South Australia and Queensland. New South Wales led the National Project Team for the Pilot and AIHW led the Technical Team. Work was undertaken with the guidance of a National Disability Data Asset Pilot Disability Advisory Council.
The National Disability Data Asset Pilot provided new insights into how people with disability interact with government services and programs. More information about the pilot and the insights they delivered is available at Pilot Test Cases – National Disability Data Asset.