The AIHW gives researchers and policy makers access to safe and secure data to investigate vital health topics. Research on the health of our community can help shape and improve the health and welfare services and programs on offer.
One of our core services is linking datasets to help researchers and policy makers tell a bigger story. For example, comparing the data on women who received the HPV (human papillomavirus) vaccination with data on women who developed cervical cancer showed that, overall, the vaccination was effective in reducing cervical cancer.
Data linkage, also called data integration and record matching, is cost-effective because it re-uses existing data. It is also non-intrusive because it avoids the need to re-contact people whose information has already been collected.
AIHW's data linkage reports
AIHW can link a range of datasets for research purposes.
We can link datasets held at AIHW, or arrange to receive datasets from external organisations for linkage. This is a list of datasets commonly linked by AIHW. A study cohort can be provided by the client, or can be derived from a dataset to be linked.
To request a data linkage please contact [email protected]. The Ethics Manager can advise you on drafting an Ethics Committee application for your research project.
Services we offer include:
As an accredited integrating authority, AIHW can undertake high-risk projects for researchers that draw information from Australian, state and territory governments while maintaining individual privacy and confidentiality. Legislation enables us to release data and we have the technical capability and governance to do so safely and securely.
Examples of approved AIHW linkage projects.
To request a quote for a data linkage, email our Data Integration Services Centre: [email protected]
We can provide indicative budget estimates in the early stages to assist with planning and budgeting. Before undertaking your linkage we will provide you with a final quotation.
The AIHW provides data linkage services on a cost-recovery basis in accordance with Australian Government Charging Framework
This section contains information about both internal datasets (ie those held at AIHW) and external datasets. Contact [email protected] to ask whether we can link specific datasets not listed.
We commonly link these datasets, held by AIHW:
Australian Cancer Database
National Death Index
National Diabetes Services Scheme
Australian Early Development Census
National Aged Care Clearinghouse
Australian Childhood Immunisation Register/Australian Immunisation Register
Medicare Benefits Schedule (a subset of this dataset is held at AIHW)
Pharmaceutical Benefits Scheme (a subset of this dataset is held at AIHW)
ACT Admitted Patient Care Collection
ACT Cancer Registry
ACT Emergency Department Information System
ACT Perinatal Data Collection
45 and Up Study
NSW deaths—ABS Mortality Data
NSW deaths—ABS Perinatal Deaths
NSW Admitted Patient Data Collection (from July 2000)
NSW Central Cancer Registry
NSW Emergency Department Data Collection
NSW Mental Health Ambulatory Data Collection
NSW Notifiable Conditions Information System
NSW Perinatal Data Collection (formally Midwives Data Collection)
NSW Perinatal Death Review Database
NSW Registry of Births, Deaths and Marriages (Birth Registrations)
NSW Registry of Births, Deaths and Marriages (Death Registrations)
NT Births Registry
NT Deaths Registry
Qld Emergency Department Information System
Qld Hospital Admitted Patient Data Collection
Qld Perinatal Data Collection
Qld Registrar General—Birth Notification
Qld Registrar General—Birth Registration
Qld Registrar General—Deaths
SA Australian Early Development Index
SA Births Registry
SA Cancer Registry
SA Child Health Record
SA Deaths Registry
SA Dental Service
SA Department of Families and Communities
SA English as Second Language Scale
SA Enrolments Census
SA National Assessment Program—Literacy and Numeracy
SA Perinatal Statistics Collection
SA Public Hospital Inpatient Separations
SA Public Hospital Emergency Department Presentations
SA Running Records
Tas Cancer Registry
Tas Perinatal Data Collection
Tas Public Hospital Admitted Patient
Tas Public Hospital Emergency Department Presentations
Vic Admitted Episodes Dataset
Vic Death Index
Vic Elective Surgery Information System
Vic Emergency Minimum Dataset
WA Birth Registrations
WA Cancer Registry
WA Electoral Roll
WA Emergency Department Data Collection
WA Hospital Morbidity Data System
WA Mental Health Information System
WA Midwives Notification System
WA Mortality Register
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