Table of contents

  • Preliminary material
    • Verso and title page
    • Contents
    • Acknowledgments
    • Abbreviations
    • Summary
  • Body section
    1. Background
      • 1.1 The scoping study
    2. Key research and policy issues
      • 2.1 Scan of recent literature
      • 2.2 Stakeholder consultations
    3. Scope and feasibility of possible CNDR
      • 3.1 Sources of carer data
      • 3.2 Data issues
    4. Possible models for a CNDR
      • 4.1 Metadata repository/data portal/data directory
      • 4.2 Decentralised virtual hub
      • 4.3 Centralised physical repository
    5. Case study: exploring the use of respite care using multiple data sets
      • 5.1 How many carers use respite care services?
      • 5.2 Source of respite care services
      • 5.3 Why is respite care not being used?
      • 5.4 The case study and CNDR models
    6. Conclusions and future directions
      • 6.1 Usefulness of a CNDR
      • 6.2 Scope of CNDR
      • 6.3 Feasibility of CNDR
      • 6.4 Future directions
  • End matter
    • Appendix 1: Data mapping
    • Appendix 2: Review of current provisions and policies
    • References