Australian Institute of Health and Welfare (2022) Chronic kidney disease: Australian facts, AIHW, Australian Government, accessed 03 February 2023.
Australian Institute of Health and Welfare. (2022). Chronic kidney disease: Australian facts. Retrieved from https://www.aihw.gov.au/reports/chronic-kidney-disease/chronic-kidney-disease
Chronic kidney disease: Australian facts. Australian Institute of Health and Welfare, 23 August 2022, https://www.aihw.gov.au/reports/chronic-kidney-disease/chronic-kidney-disease
Australian Institute of Health and Welfare. Chronic kidney disease: Australian facts [Internet]. Canberra: Australian Institute of Health and Welfare, 2022 [cited 2023 Feb. 3]. Available from: https://www.aihw.gov.au/reports/chronic-kidney-disease/chronic-kidney-disease
Australian Institute of Health and Welfare (AIHW) 2022, Chronic kidney disease: Australian facts, viewed 3 February 2023, https://www.aihw.gov.au/reports/chronic-kidney-disease/chronic-kidney-disease
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Comprehensive, accurate and timely data are necessary for effective population health monitoring of chronic kidney disease (CKD). Although national health information collections continue to develop and improve, there are still gaps and the information collected may not always be brought together efficiently for analysis (AIHW 2022a).
Increasing digitisation of health information means more detailed data are being collected, expanding the possibilities for analysing and reporting. There is greater demand for information that:
The National Strategic Action Plan for Kidney Disease identifies several data priorities that can drive improvements in the effectiveness and efficiency of kidney disease prevention, treatment and support (Department of Health 2019). Key priorities include expanding the collecting of person-centred data, and increasing data linkage and integration.
Following individuals from a diagnosis of CKD through their interactions with the health system improves our ability to analyse not only the development and trajectory of disease but also the interplay of determinants and interventions and the role and performance of the health system in preventing, treating and managing CKD.
Current opportunities to improve consumer-led and person-centred CKD data includes:
Since 2000, the Australian Governments’ National Health and Medical Research Council has expended $443.3 million on kidney disease research. The Medical Research Future Fund has invested $28.0 million in 15 grants with a focus on kidney disease research since its inception in 2015. These investments will help strengthen CKD prevention and care through providing better evidence and data.
Data on the Australian health system are largely organised around occasions of service. Data linkage, also known as data integration, brings together information from more than one source. Matching disparate pieces of information can fill gaps in knowledge on not only specific diseases and the effectiveness and quality of health services and population groups but also across the health and welfare sectors.
Linking these data, together with other data such as from surveys, allows for a richer understanding of how people and population groups interact with health services, and their health outcomes.
Two examples of recently linked data sets include the National Integrated Health Services Information Analysis Asset, developed by the AIHW, and the Multi-Agency Data Integration Project developed by the Australian Bureau of Statistics (AIHW 2022a).
Current opportunities presented by health data linkage include:
ABS (Australian Bureau of Statistics) (2022) Intergenerational Health and Mental Health Study (IHMHS), ABS, Australian Government, accessed 10 May 2022.
AIHW (Australian Institute of Health and Welfare) (2021) Geographical variation in disease: diabetes, cardiovascular and chronic kidney disease, AIHW, Australian Government, accessed 10 May 2022.
AIHW (2022a) Australia’s health 2022: data insights, AIHW, Australian Government, accessed 12 July 2022.
AIHW (2022b) Primary health care data development, AIHW, Australian Government, accessed 10 May 2022.
Department of Health (2019), National Strategic Action Plan for Kidney Disease, Australian Government, accessed 10 May 2022.
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