Data sources
This page briefly describes key survey data sources used in this report and provides definitions of disability and other relevant concepts used by these sources.
Some of these surveys were conducted during the COVID-19 pandemic and may have been affected by the pandemic and the associated government restrictions. This section summarises impacts of COVID-19 on these data sources, where relevant.
The Household, Income and Labour Dynamics in Australia (HILDA) Survey is a nationally representative, household-based longitudinal study of Australian households and individuals conducted in annual waves since 2001. Members of selected households who are Australian residents and aged 15 or older are invited to participate in a personal interview. This report uses data from the 21st wave of the HILDA Survey (2021). In 2021, 16,500 people from around 9,000 households participated in the HILDA Survey.
Impact of COVID-19 on HILDA 2021 data collection: The HILDA 2021 data collection was affected by lockdowns and restrictions put in place due to the COVID-19 pandemic. As a result, the interviews were primarily conducted over the telephone rather than face-to-face (76% of the individual interviews were completed by telephone in wave 21, compared with 96% in wave 20 and less than 10% in earlier waves). Overall, the 2021 data was found to be of similar quality to the previous waves despite the changes to data collection (Watson et al. 2022).
Self-Completion Questionnaire: In addition to personal interviews, survey participants are asked to complete a self-completion questionnaire. The questionnaire covers sensitive questions some people may not feel entirely comfortable answering in an interview.
Disability: The HILDA Survey defines disability as an impairment, long-term health condition or disability that restricts everyday activities and has lasted, or is likely to last, for a period of 6 months or more. This is similar to the definition of disability used by the ABS Short Disability Module.
Disability severity: Disability is further classified by whether a person has limitation or restriction in 3 core activities – self-care, mobility, and communication. People who always or sometimes need help with one or more core activities are referred to in this report as ‘people with severe or profound disability’. People who have disability but do not need help or supervision with core activities are referred to as people with ‘other disability status’.
The HILDA Survey does not collect information on severity of disability in every wave. The most recent collection was in the 21st wave (2021) (Summerfield et al. 2021; Wilkins et al. 2023).
Disability group: Disability group is a broad categorisation of disability. It is based on underlying health conditions and on impairments, activity limitations and participation restrictions. It is not a diagnostic grouping, nor is there a one-to-one correspondence between a health condition and a disability group.
The HILDA Survey collects information on 17 disability types, which can be combined into the following 6 disability groups:
- sensory or speech: includes sight, hearing, and speech problems
- learning and understanding disability – difficulty learning or understanding things
- physical: includes difficulty breathing, blackouts, chronic pain, limited use of arms or fingers, difficulty gripping things, limited use of feet or legs, physical restrictions, and disfigurement or deformity
- psychosocial: includes nervous or emotional conditions, and mental illness
- head injury, stroke or other brain damage
- other: includes long-term conditions that are restrictive despite treatment or medication, and other long-term conditions.
Remoteness: The remoteness categories used in HILDA are based on the Australian Statistical Geography Standard Remoteness Area (Summerfield et al. 2021). People living in remote and sparsely populated areas are not included in the HILDA sample (Watson and Wooden 2002).
This report uses data from the Australian Bureau of Statistics (ABS) 2022–23 National Aboriginal and Torres Strait Islander Health Survey (NATSIHS). The NATSIHS was designed to collect information about the health and wellbeing of Aboriginal and Torres Strait Islander people of all ages in non-remote and remote areas of Australia, including discrete Aboriginal and Torres Strait Islander communities.
Disability: In the NATSIHS a person is considered to have disability if they have one or more conditions (including long-term health conditions) which have lasted, or are likely to last, for at least 6 months and restrict everyday activities.
The NATSIHS uses the ABS Short Disability Module (SDM) to identify disability. While this module provides useful information about the characteristics of people with disability relative to those without, it is not recommended for use in measuring disability prevalence – in particular, it overestimates the number of people with less severe forms of disability (ABS 2025). The SDM produces an estimate of disability known as ‘disability or long-term health condition’. In the analyses based on the NATSIHS data in this report, people with disability or long-term health condition are referred to as ‘people with disability’.
Disability severity: Disability is further classified by whether a person has limitation or restriction in 3 core activities – self-care, mobility, and communication. People who always or sometimes need help with one or more core activities are referred to in this report as ‘people with severe or profound disability’. People who have disability but do not need help or supervision with core activities are referred to as people with ‘other disability status’.
This report uses data from the Australian Bureau of Statistics (ABS) National Health Survey (NHS) 2022. The NHS collects information on prevalence of long-term health conditions, general and mental health, and health risk factors such as smoking, alcohol consumption, diet, and physical activity (ABS 2023).
Comparison with historic NHS data: the 2022 NHS is comparable with the 2017–18 NHS and previous cycles. The 2022 NHS should not be compared with the 2020–21 survey. The 2020–21 NHS data was collected during the COVID-19 pandemic which resulted in significant changes to data collection (ABS 2023).
Coverage: The NHS collects information from people living in households (private dwellings) only. People living in cared accommodation are out of scope for this survey. See also, Remoteness.
Proxy responses: In some cases, the 2022 NHS survey questions were not answered by the selected person directly, but by a parent, guardian or proxy respondent instead.
- For children aged 0–14, survey questions were always answered by a parent or guardian on the child’s behalf.
- For people aged 15–17, parental or guardian consent was sought for the selected person to answer the questions. Where consent was not given a parent or guardian answered the questions on the selected person’s behalf. For people aged 15–17 with disability, 58% of responses were by parent or guardian, and 61% for those without disability (AIHW analysis of ABS 2024a).
- For adults aged 18 and over, proxy responses were collected for 7.6% of adults with disability and 7.3% of adults without disability (AIHW analysis of ABS 2024a).
Disability: In the NHS a person is considered to have disability if they have one or more health conditions which have lasted, or are likely to last, for at least 6 months and restrict everyday activities.
The NHS uses the ABS Short Disability Module (SDM) to identify disability. While this module provides useful information about the characteristics of people with disability relative to those without, it is not recommended for use in measuring disability prevalence – in particular, it overestimates the number of people with less severe forms of disability (ABS 2025). The SDM produces an estimate of disability known as ‘disability or long-term health condition’. In the analyses based on the NHS data in this report, people with disability or long-term health condition are referred to as ‘people with disability’. See also, Disability severity for more information on how the definition of disability in this report differs from the report’s previous versions.
Disability severity: Disability is further classified by whether a person has a limitation or restriction in 3 core activities (self-care, mobility, and communication), and/or in schooling or employment. People who always or sometimes need help with one or more core activities are referred to as ‘people with severe or profound disability’. In this report, ‘other disability status’ includes those who have:
- mild or moderate core activity limitations (have difficulties with core activities or use aids to perform those activities but do not need assistance)
- a schooling or employment restriction only
- disability or long-term health condition but no core activity limitations or schooling or employment restrictions.
In the pre-2024 versions of People with disability in Australia report, people with disability or long-term condition but without core activity limitations or schooling or employment restrictions were included in the ‘without disability or restrictive long-term health condition’ category. Therefore, findings in this report and the 2024 version are not comparable with pre-2024 versions.
The NHS collects data from people in private dwellings and does not include people living in institutional settings, such as aged care facilities. Therefore, it may underestimate disability for some groups, such as people aged 65 and over, and those with severe or profound disability.
Disability group: Disability group is a broad categorisation of disability. It is based on underlying health conditions and on impairments, activity limitations and participation restrictions. It is not a diagnostic grouping, nor is there a one-to-one correspondence between a health condition and a disability group. Disability groups are not exclusive, and people may have disabilities from more than one disability group.
The NHS identifies 6 disability groups:
- sensory or speech
- learning and understanding
- physical restriction
- psychosocial
- head injury, stroke or acquired brain injury
- other (ABS 2023).
Remoteness: The remoteness categories used in the ABS NHS are defined by the Australian Statistical Geography Standard Remoteness Structure (ABS 2016). Remoteness Areas divide Australia into 5 classes of remoteness based on a measure of relative access to services. Very remote areas are out of scope for the NHS.
This report uses data from Australian Bureau of Statistics’ (ABS) 2022 Survey of Disability, Ageing and Carers (SDAC). The SDAC is the most detailed and comprehensive source of data on disability prevalence in Australia.
Proxy responses: In some cases, SDAC 2022 survey questions were not answered by the selected person directly, but by a parent, guardian or proxy respondent instead.
- For people living in cared accommodation (such as aged care facilities), staff member(s) of the facility answered questions about each respondent.
- For children aged 0–14 and living in households, survey questions were always answered by a parent or guardian on the child’s behalf.
- For people aged 15–17 living in households, parental or guardian consent was sought for the selected person to answer the questions. Where consent was not given a parent or guardian answered the questions on the selected person’s behalf. For people aged 15–17 with disability living in households, 75% had responses provided by parent or guardian (AIHW analysis of ABS 2024b).
- For adults aged 18 and over living in households, proxy responses were collected if the selected person was unable to answer themself due to illness, impairment, injury or language problems. For adults with disability living in households, 13% had responses provided by a proxy (AIHW analysis of ABS 2024b).
Disability: the SDAC considers that a person has disability if they have at least one of a list of limitations, restrictions or impairments, which has lasted, or is likely to last, for at least 6 months and restricts everyday activities.
The limitations are grouped into 10 activities associated with daily living – self-care, mobility, communication, cognitive or emotional tasks, health care, reading or writing tasks, transport, household chores, property maintenance, and meal preparation. The SDAC also identifies 2 other life areas in which people may experience restriction or difficulty as a result of disability – schooling and employment.
Disability severity: Disability is further classified by whether a person has a limitation or restriction in 3 core activities (self-care, mobility, and communication), and/or in schooling or employment. People who always or sometimes need help with one or more core activities, have difficulty understanding or being understood by family or friends, or can communicate more easily using sign language or other non-spoken forms of communication are referred to in this report as ‘people with severe or profound disability’. People who have disability but do not need help or supervision with core activities are referred to as people with ‘other disability status’.
Disability group: Disability group is a broad categorisation of disability. It is based on underlying health conditions and on impairments, activity limitations and participation restrictions. It is not a diagnostic grouping, nor is there a one-to-one correspondence between a health condition and a disability group.
The SDAC broadly groups disabilities depending on whether they relate to functioning of the mind or the senses, or to anatomy or physiology. Each disability group may refer to a single disability or be composed of a number of broadly similar disabilities. The SDAC identifies 6 disability groups based on particular types of disability:
- sensory or speech disability group (includes loss of sight, loss of hearing, and speech difficulties disability types)
- learning and understanding disability group (refers to difficulty learning or understanding things). In earlier rounds of SDAC, this group was referred to as ‘Intellectual disability group’.
- physical disability group (includes disability arising from shortness of breath or breathing difficulties, blackouts, seizures of loss of consciousness; chronic or recurrent pain or discomfort, incomplete use of arms or fingers, difficulty gripping or holding things, incomplete use of feet or legs, restriction in physical activities or physical work, and disfigurement or deformity)
- psychosocial (includes disability arising from nervous or emotional conditions, mental illness, memory problems, and social or behavioural difficulties)
- head injury, stroke or acquired brain injury
- other (restrictions in everyday activities due to other long-term conditions or ailments) (ABS 2024c).
Remoteness: The remoteness categories used in the SDAC are defined by the Australian Statistical Geography Standard Remoteness Structure (ABS 2016). Remoteness Areas divide Australia into 5 classes of remoteness on the basis of a measure of relative access to services. Very remote areas are out of scope for the SDAC.
ABS (Australian Bureau of Statistics) (2016) Australian Statistical Geography Standard (ASGS): Volume 5 – remoteness structure, July 2016, ABS cat. no. 1270.0.55.005, accessed 4 August 2021.
ABS (2023) National Health Survey methodology, 2022, ABS, accessed 18 December 2025.
ABS (2024a) Microdata and TableBuilder: National Health Survey, 2022, ABS, AIHW analysis of microdata in TableBuilder, accessed 7 January 2026.
ABS (2024b) Microdata and TableBuilder: Disability, Ageing and Carers, Australia, 2022, ABS, AIHW analysis of microdata in TableBuilder, accessed 7 January 2026.
ABS (2024c) Disability, Ageing and Carers, Australia: Summary of Findings methodology, 2022, ABS, accessed 7 January 2026.
ABS (2025) ABS Sources of Disability Statistics, 2018–2023, ABS, accessed 16 May 2023.
Summerfield M, Garrard B, Nesa MK, Kamath R, Macalalad N, Watson N, Wilkins R and Wooden M (2021) HILDA user manual – Release 21, Melbourne Institute: Applied Economic and Social Research, University of Melbourne, accessed 4 May 2023.
Watson N, Nesa MK and Summerfield M (2022) ‘Wave 21 data quality’, HILDA Discussion Paper Series, Melbourne Institute: Applied Economic and Social Research, University of Melbourne, accessed 24 May 2023.
Watson N and Wooden M (2002) The Household, Income and Labour Dynamics in Australia (HILDA) Survey: Wave 1 Survey Methodology, HILDA Technical Paper Series No. 1/02, May 2002 [revised October 2002], accessed 9 February 2024.
Wilkins R, Vera-Toscano E and Botha F (2023) The Household, Income and Labour Dynamics in Australia Survey: selected findings from Waves 1 to 21, Melbourne Institute: Applied Economic & Social Research, University of Melbourne, accessed 23 February 2023.