Data sources
In 2011–13, the Australian Heath Survey incorporated the first Australian Bureau of Statistics (ABS) biomedical collection – the National Health Measures Survey. It involved the collection of a range of blood and urine tests from over 11,000 participants across Australia, which were then tested for various chronic disease and nutrient biomarkers.
Urine samples were collected from respondents aged 5 and over, and blood samples from respondents aged 12 and over. 36% of the survey participants volunteered to get the biomedical tests, covering 85% of the sampled households.
For more information, see:
- Australian Health Survey: biomedical results for chronic diseases
- Australian Health Survey: biomedical results for chronic diseases methodology.
Data quality statement
The data quality statement for the 2011–12 National Health Measures Survey is available on the ABS website:
Australian Health Survey: biomedical results for chronic diseases methodology
In 2012–13, the Australian Aboriginal and Torres Strait Islander Health Survey incorporated the first biomedical collection to be undertaken for the Aboriginal and Torres Strait Islander population in an ABS survey – the National Aboriginal and Torres Strait Islander Health Measures Survey (NATSIHMS). It involved the collection of a range of blood and urine tests from approximately 3,300 participants aged 18 years and over across Australia.
The NATSIHMS measured specific biomarkers for chronic disease and nutrition status, derived from tests on blood and urine samples from volunteering participants selected in the Australian Aboriginal and Torres Strait Islander Health Survey.
The National Health Survey (NHS) is conducted by the Australian Bureau of Statistics to obtain national information on the health status of Australians, their use of health services and facilities, and health-related aspects of their lifestyle.
The NHS collects self-reported data on whether a respondent had 1 or more long-term health conditions; that is, conditions that lasted, or were expected to last, 6 months or more.
The NHS refers to ‘heart, stroke and vascular disease’, which comprises people who reported having been told by a doctor or a nurse that they had any of a range of circulatory conditions comprising:
- ischaemic heart diseases (angina, heart attack and other ischaemic heart diseases)
- cerebrovascular diseases (stroke and other cerebrovascular diseases)
- oedema
- heart failure
- diseases of the arteries, arterioles and capillaries,
and that their condition was current and long-term; that is, their condition was current at the time of interview and had lasted, or was expected to last, 6 months or more.
Persons who reported having ischaemic heart diseases, cerebrovascular diseases and heart failure that were not current and long term at the time of interview are also included.
When interpreting data from the 2017–18 NHS, some limitations need to be considered:
- data that are self-reported rely on respondents knowing and providing accurate information
- the survey does not include information from people living in nursing homes or otherwise institutionalised
- residents of Very remote areas and discrete Aboriginal and Torres Strait Islander communities were excluded from the survey. This is unlikely to affect national estimates, but will impact prevalence estimates by remoteness.
Further information can be found in National Health Survey: First results, 2017–18.
Data quality statement
The data quality statement for the 2017–18 NHS is available on the ABS website:
4363.0 - National Health Survey: Users' Guide, 2017–18.
The National Aboriginal and Torres Strait Islander Health Survey (NATSIHS) is conducted by the Australian Bureau of Statistics to obtain national information on the health of Indigenous Australians, their use of health services and health-related aspects of their lifestyle. The most recent NATSIHS was conducted in 2018–19.
The NATSIHS collects information from Aboriginal and Torres Strait Islander people of all ages in non-remote and remote areas of Australia, including discrete Indigenous communities.
Further information can be found in ABS National Aboriginal and Torres Strait Islander Health Survey, 2018–19.
The Survey of Disability, Ageing and Carers (SDAC) is conducted by the Australian Bureau of Statistics to collect information about people of all ages with a disability, older people aged 65 and over, and carers of people with disability or a long-term health condition or older people. The surveys included people in both private and non-private dwellings (including people in establishments where care is provided) but excluded those in correctional institutions.
ABS SDAC 2018 has been used in this report to provide estimates on the prevalence of stroke. SDAC includes comprehensive questions on long-term conditions and associated activity limitations, and includes non-private dwellings, such as residential aged care facilities. This is particularly important when reporting on stroke because stroke is associated with increasing age, and many survivors of stroke require the special care that these facilities provide.
Further information can be found in ABS Disability, Ageing and Carers, Australia: Summary of Findings, 2018.
The AIHW National Hospital Morbidity Database (NHMD) is a compilation of episode-level records from admitted patient morbidity data collection systems in Australian hospitals.
Reporting to the NHMD occurs at the end of a person’s admitted episode of care (separation or hospitalisation) and is based on the clinical documentation for that hospitalisation.
The NHMD is based on the Admitted Patient Care National Minimum Data Set (APC NMDS). It records information on admitted patient care (hospitalisations) in essentially all hospitals in Australia, and includes demographic, administrative and length-of-stay data, as well as data on the diagnoses of the patients, the procedures they underwent in hospital and external causes of injury and poisoning.
The hospital separations data do not include episodes of non-admitted patient care given in outpatient clinics or emergency departments. Patients in these settings may be admitted subsequently, with the care provided to them as admitted patients being included in the NHMD.
The following care types were excluded when undertaking the analysis: 7.3 (newborn—unqualified days only), 9 (organ procurement—posthumous) and 10 (hospital boarder).
Further information about the NHMD can be found in Admitted patient care NMDS 2020–21.
The AIHW National Mortality Database (NMD) comprises information about causes of death and other characteristics of the person, such as sex, age at death, area of usual residence and Indigenous status. The cause of death data are provided to the AIHW by the Registries of Births, Deaths and Marriages and the National Coronial Information System (managed by the Victorian Department of Justice) and include cause of death coded by the ABS. The data are maintained by the AIHW in the NMD.
In this report, deaths registered in 2018 and earlier are based on the final version of cause of death data; deaths registered in 2019 are based on the revised version and deaths registered in 2020 and 2021 on the preliminary version. Revised and preliminary versions are subject to further revision by the ABS.
For data by Indigenous status, deaths and death rates are reported for 5 jurisdictions combined – New South Wales, Queensland, Western Australia, South Australia and the Northern Territory. These jursidictions are considered to have adequate levels of Indigenous identification in mortality data.
This report adjusts for Victorian additional death registrations of deaths that were registered in Victoria in 2017 and 2018 but were not provided to the ABS for compilation until 2019. As a result, the number of CVD deaths reported for 2017 to 2019 may differ from previously reported numbers. For more detail, see the Technical note: Victorian additional registrations and time series adjustments in Causes of death, Australian methodology.
The National Mortality Database includes information on people’s area of usual residence prior to death. For 2021, this was their SA2 based on the 2021 ASGS.
This location information from the National Mortality Database, along with IRSD values based on the ABS 2016 Census of Population and Housing, and estimated resident populations, have been used to approximate statistics for 2016 ASGS Remoteness Areas and 2016 IRSD SEIFA quintiles. This may result in a lower number of people being matched to an area due to differences in 2021 and 2016 ASGS.
It is anticipated that future updates will transition to deriving these estimates purely from 2021 ASGS and Census information.
The data quality statements underpinning the AIHW NMD can be found in the following ABS publications:
- ABS quality declaration summary for Deaths, Australia methodology.
- ABS quality declaration summary for Causes of death, Australia methodology.
For more information see National Mortality Database (NMD).
The AIHW Disease Expenditure Database provides a broad picture of the use of health system resources classified by disease groups and conditions.
It contains estimates of expenditure by Australian Burden of Disease Study condition, age group, and sex for admitted patient, emergency department, and outpatient hospital services, out-of-hospital medical services, and prescription pharmaceuticals.
It does not allocate all expenditure on health goods and services by disease – for example, neither administration expenditure nor capital expenditure can be meaningfully attributed to any particular condition due to their nature.
For more information, see Disease expenditure in Australia 2019–20.
The Australian Burden of Disease Study undertaken by the AIHW provides information on the burden of disease for the Australian population. Burden of disease analysis measures the impact of fatal (or years of life lost, YLL) and non-fatal burden (years lived with disability, YLD), with the sum of non-fatal and fatal burden equating the total burden (disability-adjusted life year, DALY).
The 2022 study builds on the AIHW’s previous burden of disease studies and disease monitoring work. It provides Australian-specific estimates for 220 diseases and injuries, grouped into 17 disease groups, for 2003, 2011, 2015, 2018 and 2022.
The 2018 study also provides estimates of how much of the burden can be attributed to 20 different risk factors. It also includes a component on the impact and causes of illness and death in Aboriginal and Torres Strait Islander people, which includes estimates of the gap in disease burden between Indigenous and non-Indigenous Australians. Estimates of the burden of disease for Indigenous Australians are available for 2003, 2011 and 2018.
For more information, see the AIHW report Burden of disease.
The AIHW National Non-admitted Patient Emergency Department Care Database (NNAPEDCD) is a compilation of episode-level records (including waiting times for care) for non-admitted patients who are registered for care in emergency departments in selected public hospitals. The database captures information only for physical presentations to emergency departments and does not include advice provided via telehealth or videoconferencing.
Patients being treated in emergency departments may be later admitted, including admission in the emergency department, another hospital ward or to hospital‑in-the-home. For this reason, there is an overlap in the scope of the NNAPEDCD, the NMDS and the APC NMDS.
Principal diagnoses for episodes of care in the NNAPEDCD 2020–21 are coded according to the Emergency Department ICD-10-AM Principal Diagnosis Shortlist.
For more information on the NNAPEDCD, see Non-admitted patient emergency department care NMDS 2020–21.
MedicineInsight is a database containing de-identified electronic health records (EHRs) from over 700 Australian general practices.
MedicineInsight data include information on people living with diabetes and their interaction with the primary health care system through general practice.
Patient population percentages have been weighted to adjust for an over-representation of registered GP sites in Tasmania.