Terms of reference
The NNHSDDC is required to:
- advise the AIHW on the scope of and development of data items for inclusion in a national data collection for neonatal hearing screening.
- review and recommend data items for inclusion, modification or deletion in the Metadata Online Registry (METEOR), to form a National Best Endeavours Data Set (NBEDS) for neonatal hearing screening, via the National Health Data and Information Standards Committee (NHDISC).
- advise the AIHW on state and territory data collection processes relating to neonatal hearing screening.
- advise on the costs and timing of implementing proposed new data items for national reporting, including the capacity and preparedness of the jurisdictions and other relevant bodies/agencies to collect and provide these data as part of the NBEDS.
- promote the use of national data standards in relevant local and national data collections.
- advise on the revision of national performance indicators for neonatal hearing screening.
- advise on the content and structure of draft AIHW reports relating to neonatal hearing screening data
- ensure that data shared between jurisdictions for information, review and clearance purposes is confidential.
In addition to the responsibilities outlined above, individual members are required to:
- consult with relevant stakeholders within their jurisdictions in a timely manner (e.g., clinicians, data providers) and keep their state/territory NHDISC representative informed of data item development as required.
- promote the NNHSDDC as a national expert body on neonatal hearing screening data.
- provide comments on papers/issues in the timeframe agreed to (if a jurisdiction has no comment, this should be conveyed to the Secretariat).
The AIHW have additional responsibility for:
- developing and managing a work program based on agreed priorities
- seeking expert clinical and/or technical advice from relevant clinical experts and other relevant bodies/agencies as necessary on behalf of the NNHSDDC.
- providing advice on known developments in other related national committees or projects.
- following data development guidelines of METEOR.
Membership
The NNHSDDC is comprised of a representative from each state and territory health authority/organisation and the AIHW, with observers and temporary members invited on a transitory basis as their expertise is required.
Member | Role | Name of representative |
|---|---|---|
| Chair | Unit Head, Maternal and Perinatal Health Unit, Priority Populations and Capability Group, AIHW | Jacqueline Rek |
| AIHW | Group Head, Priority Populations and Capability Group, AIHW | Adrian Webster |
NSW | Manager, Child and Family Health, NSW Ministry of Health | Nguyet de Mello |
Vic | Co-Director, Victorian Infant Hearing Screening Program, The Royal Children’s Hospital | Melinda Barker |
Qld | Acting Director, Healthy Hearing, Children’s Health Queensland Hospital and Health Service | Lauren McHugh |
WA | State Coordinator, Newborn Hearing Screening WA, Perth Children’s Hospital | Kristy Tomlinson |
SA | Manager, Newborn Hearing Screening Program, SA Women’s and Children’s Health Network | Bianca Liersch |
SA | Senior Information Analyst, SA Children and Family Health Service | Amanda Crook |
Tas | Senior Site Coordinator, Tasmanian Health Service – Statewide Audiology Service | Keeley Moffett |
ACT | Director of Allied Health, Women Youth and Children, ACT Health | Elissa Jacobs |
NT | CQI Manager/Senior Audiologist, NT Hearing Services | Rebecca Matthews |
Secretariat | Maternal and Perinatal Health Unit, Priority Populations and Capability Group, AIHW | Georgina Jepsen |
Secretariat
Secretariat support is provided by the AIHW MPHU.
Contact details for the Secretariat
Secretariat, National Neonatal Hearing Screening Data Development Committee
Phone: (02) 6249 5093
Email: [email protected]