The National Congenital Anomalies data collection (NCADC) is a national data collection on babies born with a congenital anomaly. It is based on cases of congenital anomalies reported to state and territory data collections including congenital anomaly registers, perinatal data collections and admitted patient data collections. Additional information on maternal characteristics are sourced from the National Perinatal Data Collection. Data are collected annually by birth cohort year with the national collection commencing with the 2016 birth cohort.
Variables to support reporting and linkage
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Temporal coverage from 1/01/2016 to 31/12/2019 |
Geographical coverage National and State Other |
Data availability
Client specified tables on request which may be subject to data provider approval (charges apply). Restricted unit record access subject to Ethics Committee approval and/or the agreement of all relevant data custodians in all states and territories (charges may apply). |
Data Scope The NCADC is a national data collection on babies with a congenital anomaly. It is based on cases of congenital anomalies reported to state and territory data collections including congenital anomaly registers, perinatal data collections and admitted patient data collections. The scope of the NCADC includes births (both live births and stillbirths) with a diagnosed congenital anomaly and terminations of pregnancy due to a congenital anomaly (if this is available). This includes conditions in the relevant edition of the ICD10-AM, including Chapter 17 (Q00- Q99), P35 (congenital viral diseases) and P371 (congenital toxoplasmosis). |
Methodology Official |
Metadata information National Congenital Anomaly Data Collection, 2021; Quality Statement(METEOR 754114) National Congenital Anomaly Data Collection, 2023 Quality Statement (METEOR 778058) |
External links and information Congenital anomalies in Australia Congenital anomalies in Australia 2002-2003 Congenital anomalies in Australia 1998 – 2001 Neural tube defects in Australia: prevalence before mandatory folic acid fortificationNeural tube defects in Australia 05 Nov 2008 |
Contact |